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Irish ME/CFS Association

🧵

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by reposting and/or liking this image.

Day 1

@mecfs

Bone-crushing exhaustion Pain Insomnia Muscle weakness Cognitive problems Dozens of other disabling symptoms 24 hours a day 7 days a week 365 days a year Possibly for the rest of my life (unless a cure or effective treatment is found) Myalgic Encephalomyelitis (ME) is a painful and disabling disease, especially in its severe forms (ME is also known as Chronic Fatigue Syndrome in some countries) Click 'Like' and 'Share' to help me become visible and give me hope for a cure! MEAwarenessPics
#MyalgicEncephalomyelitis#ChronicFatigueSyndrome#MEcfs
May 01, 2024, 01:08 AM·Public·Web
24boosts·12favorites
Public
Irish ME/CFS Association

2/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #2

@mecfs

Myalgic Encephalomvelitis (ME) also known as Chronic Fatigue Syndrome What are the symptoms of this complex, multisystemic and chronic illness? flu-like symptoms, enlarged lymph nodes widespread muscle and joint pain, headaches muscle weakness, sometimes paralysis cognitive problems, inability to concentrate, read sensitivity to light, noise, smell, touch (they can cause pain) sleep problems, sleep reversal, insomnia digestive disturbances, nausea extreme debilitating fatigue and exhaustion symptoms can get worse after minimal exertion for days, weeks, months for very severely ill sufferers, minimal exertion can lead to years of worse health or permanent deterioration many more debilitating and everchanging symptoms
Public
Irish ME/CFS Association

3/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by reposting and/or liking this image.

Day #3

@mecfs

MUSCLE Myalgic Encephalomyelitis BRAIN PAIN SPINAL CORD INFLAMMATION- (GETS SHORTENED TO "ME") in some countries also known as Chronic Fatigue Syndrome www.pinterest.com/MEAwarenessPics
Public
Irish ME/CFS Association

4/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by reposting this image.

Day #4

@mecfs

ME is also known as Chronic Fatigue Syndrome in some countries REPEATED INFECTIONS HEADACHES FEVER Myalgic CHRONIC SORE THROAT MEMORY PROBLEMS encephalomyelitis INSOMNIA PAIN dozens of everchanging symptoms on a daily basis www.facebook.com/ MEAwarenessPics PLEASE JOIN US! ALLERGIES AND INTOLERANCES SENSORY OVER-LOAD BLURRED Vision HEART PALPITATIONS BRAINFOG MUSCLE WEAKNESS DIZZINESS PROBLEMS DIGESTIVE
Public
Irish ME/CFS Association

5/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retooting this image.

Day #5


@mecfs

Myalgic Encephalomyelitis (ME) What is behind the illness with the hard to pronounce name? in some countries as Chronic Fatigue Syndrome Can't stand 25% of sufferers are housebound, wheelchair-bound or bedbound PAIN muscle pain INSOMNIA NEUROIMMUNE DISEASE joint pain disordered sleep muscle cognitive weakness problems unable to read sometimes concentrate. watch TV FATAL www.facebook.com/ MEAwarenessPics RESEARCH INTO THE BIOLOGY OF THE ILLNESS IS NEEDED TO FIND TREATMENTS invisible illness nausea headaches chronic flu-like symptoms DISORDERED IMMUNE SYSTEM debilitating severe CHILDREN fatigue and get it too exhaustion NO CURE the sickest are paralyzed endocrine irregularities and tubefed millions around the world suffer in painful isolation ALL SYMPTOMS CAN GET WORSE AFTER MINIMAL ACTIVITY sensitivity to light, sound, smell, touch
Public
Irish ME/CFS Association

6/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by reposting and/or liking

Day #6

@mecfs

I suffer from your inability to see my disability. I am a silent sufferer-an ME sufferer. Myalgic Encephalomyelitis Awareness
Public
Irish ME/CFS Association

7/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help
by sharing and/or liking this image.

Day #7


@mecfs

A Alone. B Before C Chronic, D Debilitating, E Exhausting, F Fatigue. H G Growing Headaches. Incapacitating. JJumbled words. K Knowing L Life, M May N Never be the same. O Overwhelming P Pain. Q Quiet R Restlessness. S Stop you in your T Tracks. U Unpredictable. V Vanquished. W With X Xtreme Y Yearning, for lost Z Zeal. The ABC's of living with CFIDS Poem by a CFIDS sufferer of 13 years Billie Jo Robbins Myalgic Encephalomyelitis (ME) in some countries also known as Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) Myalgic Encephalomyelitis is a devastating and painful disease affecting every part of the body. There are many symptoms: bodywide pain, cognitive problems, sleep issues and insomnia, digestive problems, headaches, repeated infections, muscle weakness, sensitivities to noise, smell, light, touch, extreme overwhelming exhaustion. These symptoms can last months, years, decades or a lifetime. There is currently NO CURE.
Public
Irish ME/CFS Association

8/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #8

@mecfs

We can experience: fatigue headache hausea fever vomiting diziness vertigo diarrhoea pain paralysis seizures hypersensitivity brainfog memory problems infections insomnia exhaustion weakness palpitations blurred vision and more... The Horror of M.E. Has a photo of a woman lying down
Public
Irish ME/CFS Association

9/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.


Day #9

@mecfs

A woman's face screening surrounded by lots of symptoms associated with ME
Public
Irish ME/CFS Association

10/

May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Month, with May 12 being International ME/CFS Day.

You can help by sharing and/or liking this image.

Day #10

@mecfs

Brain fog forecast for the Myalgic Encephalomyelitis (ME) sufferer brought to you by: www.facebook.com/MEAwarenessPics ' Short term memory problems Inability to read, watch TV Problems following a conversation Inability to concentrate Inabilty to find correct words Inability to listen to music, radio Myalgic Encephalomyelitis (ME) is a multisystemic and painful disease - cognitive problems are part of being il with this disease. Many sufferers experience various cognitive problems every day and these can get worse after too much exertion (which can be just a small activity). In severe ME, cognitive problems can prevent communication.
Public
Irish ME/CFS Association

11/

May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Month, with May 12 being International ME/CFS Day.

You can help by sharing +/or liking this image.

Day #11

@mecfs

REPOST THIS RIBBON IF YOU OR SOMEONE YOU KNOW SUFFERS FROM Myalgic Encephalomyelitis (ME) in some countries also known as Chronic Fatigue Syndrome
Public
Irish ME/CFS Association

12/

May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month).

You can help by sharing and/or liking this image.

Day #12


@mecfs

Most people will know that FLORENCE NIGHTINGALE was the founder of modern nursing and a great innovator. Some people may recall that she invented the pie chart (actually, it was William Playfair who invented i, she just popularised its use). Afew people may know that her parents- called her Florence after the Italian city where she was born. But she also suffered with a DEBILITATING and PAINFUL DISEASE which left her HOUSEBOUND and BEDBOUND for DECADES. This disease is now recognised as Myalgic Encephalomyelitis (ME) _ (ME is also known as Chronic Fatigue Syndrome in some countries) A Florence Nightingale's birthday was 12th MAY. In her honour, this day has been chosen as the International Myalgic Encephalomyelitis Awareness Day. More than 100 YEARS after her death, this disease is STILL POORLY UNDERSTOOD, it is inadequately researched, there is NO CURE or universally ¢ effective treatment. MILLIONS of people (including children) are SUFFERING. WHAT WOULD FLORENCE NIGHTINGALE THINK?www.facebook.com/MEAwarenessPics
Public
Irish ME/CFS Association

13/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #13

@mecfs

BE M.E. Aware Being unable to think / clearly, find words or remember new information Myalgic Encephalomyelitis (ME) is a serious neurological chronic illness. There is no cure, sufferers range from mild to severe. A quarter are housebound or bedbound. Every symptom is exacerbated by physical & psychological exertion which is not improved by rest. Being unable to tolerate light, noise or smells. Numbness.
Public
Irish ME/CFS Association

14/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #14

Invest in ME Research Charity
@mecfs @invest_in_me_research

Living with Myalgic Encephalomyelitis (ME) is not a choice people make | ME often starts with a flu or a viral infection. In many ways, | | it feels like a flu that doesn’t go away but there are many additional symptoms, especially neurological in nature. ME is disabling. Many cannot work or perform personal care and need assistance. ME is a long term chronic disease. 1 ME affects all age groups including children.
Public
Irish ME/CFS Association

15/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #15


@mecfs

Living with Myalgic Encephalomyelitis (ME) is not a choice people make | ME often starts with a flu or a viral infection. In many ways, | | it feels like a flu that doesn’t go away but there are many additional symptoms, especially neurological in nature. ME is disabling. Many cannot work or perform personal care and need assistance. ME is a long term chronic disease. 1 ME affects all age groups including children.
Public
Irish ME/CFS Association

16/

May is / Awareness Month.

You can help by sharing and/or liking this image.

Day #16
@mecfs

ME is when bathroom trips become triathlons Recent research indicates problems with the biochemical processes that convert food into energy the body can use. Many ME patients are unable to complete normal daily activities. Some are unable to walk in the most severe are unable to care for themselves
Public
Irish ME/CFS Association

17/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #17
@mecfs

Myalgic Encephalomyelitis (ME) How ill are people with ME? In mild cases, people lose 50% or more of their function, their symptoms don't allow them to function normally. Most people would consider having to decrease their activity by 50% due to illness severe, not mild! Moderate cases of ME cannot work, are mostly housebound and often cannot care for themselves fully 5 or need to use a wheelchair out of doors. . Severe cases are bedbound, with many H debilitating symptoms and very low quality of life. & Very severe cases are paralyzed, cannot tolerate any stimuli or being touched, need tubefeeding or oxygen. They are some of the sickest people on Earth. ME is an extraordinarily disabling disease
Public
Irish ME/CFS Association

18/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #18

  
@mecfs

PAIN -– poem by a CFIDS (ME) sufferer of 13 years Minute after minute, Hour after hour, Day after day, Year after year. Aching, Stabbing, Crushing, Searing, Wrenching, Piercing, Mindnumbing, Exhausting, Sick to your summer, Wake you up from your sleep, Stop you in your tracks, Wanting to die, Disabling, Life stealing
Public
Irish ME/CFS Association

19/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #19

 
@mecfs

Myalgic encephalomyelitis doesn't affect only adults: children become ill too and they can be very severely affected In terms of ME, being very severely affected means that the person is completely bedbound and/or paralyzed, tubefed, suffers with a myriad of severe symptoms and requires round the clock care. This is unimaginable suffering.
Public
Irish ME/CFS Association

20/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #20



@mecfs

Myalgic Encephalomyelitis (ME) a debilitating, multisystemic and painful disease - employment can become impossible. - education can become disrupted - social life and hobbies can become limited - many patients are housebound and unable to care for themselves - sickest patients require wheelchairs or are bedbound worst cases are paralyzed, tubefed and need oxygen ‘ adults as well as CHILDREN are affected
Public
Irish ME/CFS Association

21/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #21



@mecfs

Did you know that MYALGIC ENCEPHALOMYELITIS (ME) also known as Chronic Fatigue Syndrome (CFS) has dozens of symptoms including widespread pain, cognitive problems, digestive problems, recurring infections, severe debilitating fatigue, insomnia, muscle weakness, light and noise sensitivity?
Public *
Ruby Jones

@IrishMECFSAssociation @mecfs a good illustration of why only calling it 'ME' and not ME/CFS is so harmful. I have NEVER had muscle pain from this, but my chronic fatigue is extraordinarily debilitating and it guts me that so many advocates choose to minimise the impact of fatigue, because they think it's harder for outsiders to understand and repect.

ALWAYS say ME/CFS, and never minimise the chronic fatigue aspect as in this illustration.

Public
Ruby Jones

@IrishMECFSAssociation @mecfs This directly led to delay in my diagnosis. It is concretely harmful.

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