Came home after a tiresome trip to Dublin for medical appointment, and was feeling dreadfully tired and sore (due to #hEDS and #AutoimmuneArthritis) and rather sorry for myself. Cheered right up when saw this lovely book post of my Advanced Reader Copies of a book of essays by Irish autistic people that I had the honour of editing

Today I have #COVID for the 3rd time.

First time ended up in hospital via ambulance.

Second time was only 6 month ago.

Had a booster Vaccine this June.

I am a magnet to this disease.

Thats life on #Immunosuppressants

leave me alone, i have a literal disability that attacks my hands. i do the best i can stand to do. #autoimmunearthritis #chronicpainwarrior #spoonie

My Physical trainer helped me ground myself so much today, and my senses are so much happier now. Did a fun exercise of throwing and catching, to get my brain working and coordination firing, to lift the brain fog. I love having a trained specialist who gets my #hEDS, #AutoimmuneArthritis, and associated #BrainFog. I always come out feeling better

I would love if there was an extra hour between 11am and midday. My body and brain work best in the morning once the #arthritis has loosened up, so morning is my time to tidy up, cook dinner in slow cooker, and #write. But an extra hour would give me time to exercise and / or read too.

After 1pm the school runs start, and lunch must be eaten, and the #fatigue hits hard and the #arthritis becomes unpredictable.

#AutoimmuneArthritis and #BrainFog really shortens ones day.

Very impressed with these #Arthrits compression gloves. Slept with them on and woke without aching finger joints. Although as I soon as I took them off to make breakfast the aches returns. Bought from #ArthritisIreland website. Dear, but worth it for having hands that function. Wearing them all day, especially in this freezing weather.

#AutoimmuneArthritis
#Spondylarthritis

There's nothing like a #MaeveBinchy audiobook (narrated by KateBinchy.. #MaeveBinchy should always be narrated by an Irish accent) on a day with bone deep fatigue.

Not sure if my fatigue is the start of a flare of #AutoimmuneArthritis or a touch of #AutisticBurnout after a socially heavy few days, but the cause is not important once I treat the symptoms and just rest, look after myself, and listen to magnificent tales.

Couldn't survive the pain of #AutoimmuneArthritis and #hypermobileEhlersDanlosSyndrome (hEDS) without #CBD balm but by God it makes my clothes stink. Seems to cling to some materials esp jersey cotton.

In listening to

Staying in bed later than the norm is a regular occurrence for me

A key symptom of #AutoimmuneArthritis is morning stiffness
There've bn mornings I've crawled to , atm it's more of a waddle until my joints, muscles &ligaments ease

Any length of time in one position& my body siezes, fluid builds up in my joints due to my immune system constantly attacking thm. The natural antiinflammatory factors in my body don't work, ergo nding time to get moving