US press release:
Researchers identify key biomarkers for chronic fatigue syndrome
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#cfs
20 posts11 participants0 posts today
Here is an AI summary of a sympathetic article in the German newspaper Der Spiegel
(copied from here: https://www.s4me.info/threads/news-from-germany.11006/post-632963 )
Link to article in German
https://www.spiegel.de/gesundheit/diagnose/me-cfs-eine-psychotherapeutin-erklaert-weshalb-die-krankheit-so-oft-verkannt-wird-a-a65d8a5f-c658-4a12-958c-99ed59fa0583
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs_de
From Canada:
Circulating FGF-21 as a Disease-Modifying Factor Associated with Distinct Symptoms and Cognitive Profiles in Myalgic Encephalomyelitis and Fibromyalgia
https://www.mdpi.com/1422-0067/26/16/7670
Screenshot from latest Science for ME weekly update
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
The Sunday Times As my daughter died of ME, the state met in secret to blame me
Screenshot from latest Science for ME weekly update
#SevereME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Replied in thread
Hope to see a few of you at this 
#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Dundalk
@IrishMECFSAssociation @mecfs
#FYI #medicine #me #me_cfs #cfs #JarredYounger
Huge ME/CFS genetic study introduction.
Yes, that would pave the way to diagnoses supported by individual genetic testing. And also would help to understand and treat the wide range of symptoms in Long/Post Covid, which I suspect is rooting in similar genetic variants. The disorders in cellular vesical transport and mitocondrial disturbances are like "famous" already.
Donation links to support the researchers behind #DecodeME
Links:
https://www.actionforme.org.uk/research-campaigns/our-research-work/genetics-centre-of-excellence/
https://www.actionforme.org.uk/sequenceme-first-of-a-kind-genetic-study/
https://www.actionforme.org.uk/research-campaigns/our-research-work/decodeme-donate/
https://donate.ed.ac.uk/support/ME-CFSResearch
Screenshot from latest Science for ME weekly update
Prof David Systrom presented findings from an invasive cardiopulmonary exercise test (iCPET) in ME/CFS and Long COVID.
https://www.youtube.com/watch?v=YIq1QMCpWHo
Screenshot from AMMES email newsletter
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Replied in thread
@SteveThompson read aout a studie about low dose nicotine patches, which helps some #cfs patients. Gotta trz the cobination!
Efficacy of vitamin D replacement therapy on 28 cases of myalgic encephalomyelitis/chronic fatigue syndrome after COVID-19 vaccination
https://www.sciencedirect.com/science/article/pii/S089990072500036X
Results are very different to this UK trial
https://pubmed.ncbi.nlm.nih.gov/25455721/
Screenshot from AMMES July email newsletter
#PwME #MEcfs #CFS @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Replied in thread
Cognitive Dysfunction in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome—Aetiology and Potential Treatments
https://www.mdpi.com/1422-0067/26/5/1896
Screenshot from AMMES July email newsletter
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
If you'd like to support the researchers behind #DecodeME with other projects such as #SequenceME ( https://www.clinicalresearchnewsonline.com/cln/pressreleases/2024/12/18/oxford-nanopore-action-for-me-and-university-of-edinburgh-launch-groundbreaking-study-into-the-genetics-of-me ) , here's a donation link https://www.decodeme.org.uk/support-us/
Alternatively donate directly to Prof Ponting's #MECFS lab research
https://donate.ed.ac.uk/support/ME-CFSResearch
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Mortality in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): an updated analysis of memorial records
https://www.tandfonline.com/doi/full/10.1080/21641846.2025.2543201
Comment: many people who die in their 70s/80s/90s wouldn't be added to this list so I don't find this evidence very convincing
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Scientists find link between genes and ME/chronic fatigue syndrome
https://www.theguardian.com/society/2025/aug/06/genes-me-chronic-fatigue-syndrome
The Guardian · Scientists find link between genes and ME/chronic fatigue syndrome
Short YouTube video from DecodeME team briefly explaining the
DecodeME Initial DNA Results
https://www.youtube.com/shorts/0S5u88qpVc4
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
New blog post from DecodeME team explaining new findings and discussing them in a bit more detail:
"X marks the spot where ME/CFS biology can be discovered"
https://www.decodeme.org.uk/x-marks-the-spot/
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs