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81 posts50 participants15 posts today
Irish ME/CFS Association<p>3/<br />“Local mother speaks out about ME impact on daughter”</p><p><a href="https://www.northernsound.ie/news/local-mother-speaks-out-about-me-impact-on-daughter-263475" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://www.</span><span class="ellipsis">northernsound.ie/news/local-mo</span><span class="invisible">ther-speaks-out-about-me-impact-on-daughter-263475</span></a></p><p>Short text summary of what Shirley said during interview.<br /><a href="https://mastodon.ie/tags/mecfs" class="mention hashtag" rel="tag">#<span>mecfs</span></a> <br /><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention">@<span>mecfs</span></a></span></p>
NagaChronic illness, shit keeps getting shittier (1/n)
Tom Kindlon<p>⬆️<br>I was pleased with this interview (full disclosure: I helped organise it)<br><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <br><span class="h-card" translate="no"><a href="https://mastodon.ie/@IrishMECFSAssociation" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>IrishMECFSAssociation</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Irish ME/CFS Association<p>2/<br />Only comment we have seen so far from someone who listened to it:</p><p>“Excellent interview for awareness.”</p><p><a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="tag">#<span>PwME</span></a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="tag">#<span>MEcfs</span></a> <br /><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention">@<span>mecfs</span></a></span></p>
Martin Rücker<p>web und gmx haben meinen Artikel über die <a href="https://metalhead.club/tags/Nikotinpflaster" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Nikotinpflaster</span></a> Therapie bei <a href="https://metalhead.club/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://metalhead.club/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> übernommen - damit jetzt hier frei lesbar: <a href="https://web.de/magazine/gesundheit/nikotinpflaster-therapie-long-covid-fatigue-syndrom-41177972" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">web.de/magazine/gesundheit/nik</span><span class="invisible">otinpflaster-therapie-long-covid-fatigue-syndrom-41177972</span></a></p>
Irish ME/CFS Association<p>A recording of today&#39;s interview is now available here:<br /><a href="https://www.northernsound.ie/podcasts/the-joe-finnegan-show/podcast-me-cfs-263474" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://www.</span><span class="ellipsis">northernsound.ie/podcasts/the-</span><span class="invisible">joe-finnegan-show/podcast-me-cfs-263474</span></a></p><p>Thanks very much to Dr Speight &amp; to Shirley for speaking. Thanks also to Ciaran who initially contacted the show and to Lee (who had agreed to be interviewed) for submitting some comments</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention">@<span>mecfs</span></a></span><br /><a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="tag">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="tag">#<span>CFS</span></a> <a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="tag">#<span>PwME</span></a></p>

Does it ever seem like symptoms get worse when you start to reflect on how much you've done lately and think maybe you're doing too much? Sometimes I wonder if tracking symptoms makes them worse. I also have had pem when I'm not thinking about it at so I don't know if it's coincidence.
It was unusually hard to wake up this morning. Could be change of weather, not taking propanolol for over 24h, who knows! This #longcovid is sometimes predictable, sometimes not!