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#MedEdMatters

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Irish ME/CFS Association<p>From Bateman Horne Center<br />@BatemanHorne</p><p><a href="https://mastodon.ie/tags/MedEdMonday" class="mention hashtag" rel="tag">#<span>MedEdMonday</span></a>. </p><p>Pacing for a dysfunctional metabolic system (pw <a href="https://mastodon.ie/tags/PEM" class="mention hashtag" rel="tag">#<span>PEM</span></a>/PESE) is a lifestyle strategy for managing exertion and recovery to baseline. It&#39;s more nuanced than traditional approaches to energy conservation. Learn more 👉<a href="https://bit.ly/3NocsZj" target="_blank" rel="nofollow noopener noreferrer" translate="no"><span class="invisible">https://</span><span class="">bit.ly/3NocsZj</span><span class="invisible"></span></a></p><p><a href="https://mastodon.ie/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mastodon.ie/tags/myalgicencephalomyelitis" class="mention hashtag" rel="tag">#<span>myalgicencephalomyelitis</span></a> <a href="https://mastodon.ie/tags/LongCOVID" class="mention hashtag" rel="tag">#<span>LongCOVID</span></a> <a href="https://mastodon.ie/tags/PEM" class="mention hashtag" rel="tag">#<span>PEM</span></a> <a href="https://mastodon.ie/tags/PESE" class="mention hashtag" rel="tag">#<span>PESE</span></a> <a href="https://mastodon.ie/tags/MedEdMatters" class="mention hashtag" rel="tag">#<span>MedEdMatters</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention">@<span>longcovid</span></a></span></p>
Tom Kindlon<p>From Bateman Horne Center<br>@BatemanHorne</p><p>The broken battery metaphor is used to teach healthcare professionals about the physiological mechanisms of PEM/PESE. Check out the "Pacing for PEM/PESE" handout. 👉<a href="https://bit.ly/3NocsZj" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="">bit.ly/3NocsZj</span><span class="invisible"></span></a></p><p><a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://disabled.social/tags/myalgicencephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myalgicencephalomyelitis</span></a> <a href="https://disabled.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> <a href="https://disabled.social/tags/PEM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PEM</span></a> <a href="https://disabled.social/tags/PESE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PESE</span></a> <a href="https://disabled.social/tags/MedEdMatters" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MedEdMatters</span></a> <span class="h-card"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span></p>
haven4books<p>CC: <a href="https://weirder.earth/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a><br><span class="h-card"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>****<br>RT: @BatemanHorne</p><p>A recent article by Jeff Wise (@ManvBrain) in <br>@NYMag was a disturbing misrepresentation of the science around <a href="https://weirder.earth/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> and other post-viral conditions. It disregarded decades of evidenced-based research and minimized the experience of our communities.</p><p><a href="https://twitter.com/BatemanHorne/status/1590477701403803654?s=20&amp;t=NuHfHG4QFdww8KJpETmnPw" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="ellipsis">twitter.com/BatemanHorne/statu</span><span class="invisible">s/1590477701403803654?s=20&amp;t=NuHfHG4QFdww8KJpETmnPw</span></a></p><p>We are also disappointed by the misrepresentation of information provided by Dr. Bateman (@LBatemanMD) and other leading experts. This was irresponsible journalism.</p><p><a href="https://twitter.com/BatemanHorne/status/1590477702947303425?s=20&amp;t=NuHfHG4QFdww8KJpETmnPw" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="ellipsis">twitter.com/BatemanHorne/statu</span><span class="invisible">s/1590477702947303425?s=20&amp;t=NuHfHG4QFdww8KJpETmnPw</span></a></p><p>BHC remains committed to further educating, advancing the science, and bringing awareness to <a href="https://weirder.earth/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> and <a href="https://weirder.earth/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> on behalf of the individuals and families devastated by these diseases. This is why <a href="https://weirder.earth/tags/MedEdMatters" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MedEdMatters</span></a>. </p><p><a href="https://twitter.com/BatemanHorne/status/1590477704394334210?s=20&amp;t=NuHfHG4QFdww8KJpETmnPw" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="ellipsis">twitter.com/BatemanHorne/statu</span><span class="invisible">s/1590477704394334210?s=20&amp;t=NuHfHG4QFdww8KJpETmnPw</span></a></p>
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