The Daily Mirror, UK. 9th April 1998.
An article about a book that was about to be released by Simon Wessely.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
@rfh1955
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Continued thread
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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath
#MyalgicE #MEeps #CFSME #LongCovid #NeuroME #mecfs
@mecfs #longcovid @longcovid
It's 8-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the #PACEtrial showed graded activity programs are safe.
https://journals.sagepub.com/doi/full/10.1177/1359105317697323
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CBT
Remembering ME activist (& my friend) Robert "Bob" Courtney, who passed away on March 7, 2018.
This is from the @MEAssociation magazine
One can read about some of the specifics of Bob's work here: http://me-pedia.org/wiki/Robert_Courtney
#MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME #ME @mecfs
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From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf
#MyalgicE #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid @mecfs #MEcfs #CFS #PwME @longcovid
#LongCovid
"A suicide note was found in the back of her parents' car".
The Daily Echo, Bournemouth, England. 18th February 2016.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
@rfh1955
Royal Free 1955 @rfh1955.bsky.social
The Sunday Mercury, Birmingham, England. 15th February 1998. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
The Los Angeles Times. 12th February 1970. Another paper carrying the Alfred Friendly piece on 'Reconsideration'. Interesting that only one UK paper (Sunday Times) carried an article on Beard/McEvedy.
#rfh1955
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
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“ME is a neurological condition, it is a fluctuating life limiting condition that affects every part of the patient’s life.”
The Evening Telegraph, Derby, England. 3rd February 1993. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
The Irish Daily Star. 3rd February 1993. An article about 'TATT'. The Star asks Wessely colleague Anthony David to comment on it.
Another relatively early mention of the term #myalgicencephalomyelitis in the UK press from this day, forty-two years ago.
The Guardian, UK. 2nd February 1983. #mecfs #cfsme #myalgice
@rfh1955
New:
Digital health app data reveals an effect of ovarian hormones on long COVID and myalgic encephalomyelitis symptoms
https://www.medrxiv.org/content/10.1101/2025.01.24.25321092v1
"Menstruation is associated with worsened symptoms in long COVID and ME/CFS"
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
The Daily Telegraph, UK. 26th January 2010. The case of Lynn Gilderdale.
"Keir Starmer, the Director of Public Prosecutions...had taken the decision to pursue the attempted murder charge in November".
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Details for the next meeting of the Bray ME/CFS adult support group
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #Bray
@mecfs
![From Audrey Lodge
ME/CFS Meeting: Bray, Co Wicklow. Friday 31st January 2025, 12.30 PM
Dear All,
The next ME/CFS Adult (Bray) meeting will take place on Friday 31st January at 12.30pm. Usual venue, details below.
Usual Venue Details for Bray Meeting:
The venue is Villa Pacis which is the community hall in the grounds of Our Lady Queen of Peace Church, Vevay Road, Bray, A98VP93. There is usually plenty of free parking available on site and the venue can be accessed via either of the Vevay road or Puntland road entrances. It is a wheelchair accessible venue.
The meeting will last for approx. 1 hour 15 minutes and there will be a cuppa available afterwards for anyone that is able to stay. Feel free to make yourself a cuppa in the kitchen beforehand, after your journey. I have checked with the caretaker and they are happy for us to do.
If you have any queries in relation to the above, please feel free to email me back, call me or WhatsApp/text me.
Looking forward to seeing as many of you that are able to make it next week.
If you are new to the group and hope to attend, it would be great if you could let me know if you plan on attending but I understand that given the nature of the illness it may depend on how you are on the day.
Warm wishes,
Audrey Lodge
audreylodge [at] hotmail dot com](https://cdn.masto.host/mastodonie/media_attachments/files/113/861/396/596/261/054/original/8a517171281f7759.png "From Audrey Lodge
ME/CFS Meeting: Bray, Co Wicklow. Friday 31st January 2025, 12.30 PM
Dear All,
The next ME/CFS Adult (Bray) meeting will take place on Friday 31st January at 12.30pm. Usual venue, details below.
Usual Venue Details for Bray Meeting:
The venue is Villa Pacis which is the community hall in the grounds of Our Lady Queen of Peace Church, Vevay Road, Bray, A98VP93. There is usually plenty of free parking available on site and the venue can be accessed via either of the Vevay road or Puntland road entrances. It is a wheelchair accessible venue.
The meeting will last for approx. 1 hour 15 minutes and there will be a cuppa available afterwards for anyone that is able to stay. Feel free to make yourself a cuppa in the kitchen beforehand, after your journey. I have checked with the caretaker and they are happy for us to do.
If you have any queries in relation to the above, please feel free to email me back, call me or WhatsApp/text me.
Looking forward to seeing as many of you that are able to make it next week.
If you are new to the group and hope to attend, it would be great if you could let me know if you plan on attending but I understand that given the nature of the illness it may depend on how you are on the day.
Warm wishes,
Audrey Lodge
audreylodge [at] hotmail dot com")
Irish ME/CFS Association - for Information, Support & ResearchApril 8, 2025: Educational event for GPs: "Key messages for Primary Care on the Diagnosis and Management of Post-Viral Fatigue Syndrome and ME/CFS"
Did you say sorry?!?
#BPS #harm #trauma #appologize #sorry
#pwme #myalgicE #millionsmissing
PS: subtitles included.
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From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC
#mecfs #LongCovid
#PostCovidSyndrome #postcovid @mecfs @longcovid
"The New Year’s Resolutions of a Chronically Ill Person" (2022)
Author has #MyalgicE
https://themighty.com/topic/chronic-fatigue-syndrome/new-years-resolutions-chronic-illness/
#chronicillness #Spoonie #MyalgicEncephalomyelitis #PwME @mecfs #mecfs #LongCovid @spoonies @chronicillness
The MightyThe New Year’s Resolutions of a Chronically Ill Person
Tuesday 17 December
5pm - 6.30pm