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#NVLD

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JustRosy 🇺🇦<p>So tired of everyone splitting hairs over different Executive Dysfunction Disorders. Look, if you're a kid or an adult and you're struggling with school, socialization, or work in ways that most other people at least appear not to be, then you probably have one or more Executive Dysfunction Disorders. Considering how there are so many overlaps between Autism, Aspergers, ADHD, NVLD, &amp; PDD-NOS, honestly, at this point, I think it doesn't matter.</p><p>What's needed is a way for people to identify specific symptoms and then specific strategies, accommodations, and so on. At the end of the day, literally, that's what matters to those who have it and those who know/love them.</p><p>I say this as someone diagnosed with <a href="https://universeodon.com/tags/ADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ADHD</span></a> &amp; <a href="https://universeodon.com/tags/aspergers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>aspergers</span></a> who has been told "That's not possible" and then, "Yeah, that happens," and who is now realizing that I have some of the symptoms of <a href="https://universeodon.com/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a> too, now that I've looked that up on a few related sites.</p><p>What I need is a workable plan for my adult self, not split hairs</p>
Susan Larson ♀️🏳️‍🌈🏳️‍⚧️🌈<p>What is a <a href="https://mastodon.online/tags/nonverbal" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>nonverbal</span></a> <a href="https://mastodon.online/tags/learningdisorder" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>learningdisorder</span></a>? <a href="https://mastodon.online/tags/TimWalz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TimWalz</span></a>’s <a href="https://mastodon.online/tags/son" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>son</span></a> <a href="https://mastodon.online/tags/Gus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Gus</span></a>’ <a href="https://mastodon.online/tags/condition" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>condition</span></a>, <a href="https://mastodon.online/tags/explained" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>explained</span></a>. </p><p>Almost 3 million kids in North America have the <a href="https://mastodon.online/tags/learningdisability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>learningdisability</span></a> <a href="https://mastodon.online/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a>. It affects <a href="https://mastodon.online/tags/spatialvisualskills" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spatialvisualskills</span></a> and has nothing to do with <a href="https://mastodon.online/tags/speaking" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>speaking</span></a> abilities. </p><p><a href="https://www.nbcnews.com/health/health-news/nonverbal-learning-disorder-tim-walzs-son-gus-condition-explained-rcna167804" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">nbcnews.com/health/health-news</span><span class="invisible">/nonverbal-learning-disorder-tim-walzs-son-gus-condition-explained-rcna167804</span></a></p>
Doug Grinbergs<p>Re: Gus Walz' heartwarming reaction to his dad on stage at DNC, I noticed Tim Walz Wikipedia article has no mention of Gus (<a href="https://mstdn.social/tags/neurodiverse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neurodiverse</span></a> <a href="https://mstdn.social/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a> <a href="https://mstdn.social/tags/NLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NLD</span></a>) or Hope - seen in viral state fair ride😆 video with her dad.<br><a href="https://en.wikipedia.org/wiki/Tim_Walz" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">en.wikipedia.org/wiki/Tim_Walz</span><span class="invisible"></span></a></p><p>Gus Walz and Hope Walz: Who Are Tim Walz’s Kids? - The Daily Beast<br><a href="https://www.thedailybeast.com/gus-walz-and-hope-walz-who-are-tim-walzs-kids" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thedailybeast.com/gus-walz-and</span><span class="invisible">-hope-walz-who-are-tim-walzs-kids</span></a><br><a href="https://mstdn.social/tags/TimWalz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TimWalz</span></a> <a href="https://mstdn.social/tags/GusWalz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>GusWalz</span></a> <a href="https://mstdn.social/tags/HopeWalz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HopeWalz</span></a></p>
Untempered Steel 🇺🇦<p>I used to think they were just panic attacks, but panic attacks are based on fear, you sweat and have heart palpitations, that isn&#39;t how I experience these attacks. I sometimes cry, but usually do not, it is mostly internal. I have <a href="https://mastodon.ie/tags/NVLD" class="mention hashtag" rel="tag">#<span>NVLD</span></a> also, I remember being kept in during recess as a kid, being forced to do math, crying, unable to calculate and in an internal meltdown. I recognise this memory now, as an adult, for what it was.</p>
Michelle<p>Making a new pinned post because I wanna... </p><p>I'm Michelle and I live in the PNW. I've worked in AAA games for nearly a decade in various roles starting from CS to QA to Game Audio. I last worked on Ghost of Tsushima 🍁 </p><p>I currently work for Unlock Audio providing Project Management and Implementation. </p><p>I also work for HakJak as a Sound Designer and I'm working on <a href="https://www.pigeonsimulator.com/" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="">pigeonsimulator.com/</span><span class="invisible"></span></a> 🕊️ </p><p>I'm a <a href="https://mastodon.gamedev.place/tags/Disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disabled</span></a> <a href="https://mastodon.gamedev.place/tags/GameAudio" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>GameAudio</span></a> dev my challenges include <a href="https://mastodon.gamedev.place/tags/Lupus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Lupus</span></a> and <a href="https://mastodon.gamedev.place/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a></p>
Energetic Nova<p>Anyone else who is NVLD? </p><p><a href="https://newsie.social/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a> <br><a href="https://newsie.social/tags/ActuallyNVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ActuallyNVLD</span></a> <br>I identify with autistics, I am seen as autistic but Auditory&gt;Visual.</p>
Skaly<p>Things I'm not expected to be able of but have extra abilities in due to <a href="https://mastodonapp.uk/tags/neurodiversity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neurodiversity</span></a>:<br>- Hyper fixation. Get 2 week's worth of productivity in a day, this happens unprompted (<a href="https://mastodonapp.uk/tags/ADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ADHD</span></a>).<br>- Have very deep insights about relationships, society and understanding of myself and heal my relationships, cut unhealthy ones quickly (cPTSD, after years).<br>- Be great with words, learning languages quickly, write a book in my non native language (<a href="https://mastodonapp.uk/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a>)<br>- Love endlessly, being positive</p>
Skaly<p>Things I'm expected to do and can't due to <a href="https://mastodonapp.uk/tags/neurodiversity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neurodiversity</span></a>:<br>- Read maps, graphs, do geometry practices, work in Excel, understand directions, watch 3D films, understand body language and facial expressions (<a href="https://mastodonapp.uk/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a>)<br>- Do guided meditation (intrusive thoughts, <a href="https://mastodonapp.uk/tags/OCD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>OCD</span></a>)<br>- Sit still, stay on the same topic in a conversation, have even a semi consistent mood or focus abilities (<a href="https://mastodonapp.uk/tags/ADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ADHD</span></a> / ADD)<br>- Sleep well, eat normally, respond normally to a person yelling or touch (cPTSD)</p><p>See next toot</p>
Untempered Steel 🇺🇦<p><span class="h-card" translate="no"><a href="https://fosstodon.org/@PeteLittle1970" class="u-url mention">@<span>PeteLittle1970</span></a></span> <span class="h-card" translate="no"><a href="https://writing.exchange/@IzabelaKaramia" class="u-url mention">@<span>IzabelaKaramia</span></a></span> <span class="h-card" translate="no"><a href="https://neurodifferent.me/@obrerx" class="u-url mention">@<span>obrerx</span></a></span> Greater mathematical ability, or indeed any mathematical ability, would have helped me a lot, but alas I my mind is built for metaphors because of <a href="https://mastodon.ie/tags/NVLD" class="mention hashtag" rel="tag">#<span>NVLD</span></a> and a poet-philosopher type, who spends most of his time online, is not one who is built for success in todays world. Sheldon Cooper I am not. I actually love maths in concept, I just can&#39;t calculate for crap.</p>
Fediverse Frank :superman2025:<p><span class="h-card"><a href="https://toot.community/@mmedada" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mmedada</span></a></span> I’m 34 and I’ve been seeing a therapist for about 4 years now. I started seeing him for anxiety and depression, but within a year I started to realize that I might be living with undiagnosed <a href="https://ramblings.social/tags/ADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ADHD</span></a> or <a href="https://ramblings.social/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a> (or both). I asked about getting an assessment, but my therapist felt there wasn’t a real benefit to it — he worked with my physician to get me a prescription to help me treat the symptoms, and that’s been a huge help.</p>
Sean Lake: famous ballet :bc:<p><span class="h-card"><a href="https://toot.community/@bjornlarssen" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>bjornlarssen</span></a></span> OH MOOD</p><p>I’m <a href="https://beige.party/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a>. We are known for being hyperverbal. Seems helpful, but yes and no? I did win writing awards in school, but the amount of effort that went into it was apparently not normal.</p><p>I remember my freshman composition professor in college reacting with stunned disbelief when he said a paper I’d written for a very challenging assignment was excellent, and I responded by saying that it had taken me around 100 hours to write. I’d calculated. Except he didn’t seem to disbelieve me, he just seemed to be wondering how that was possible. He didn’t treat it like it was good, or fine as long as the resulting writing was good. He didn’t even try to explain it away as a different problem like time management, as if there would have been any assignment to turn in if I hadn’t had a painfully tight grip on my time management. That really stuck with me. No one had ever believed me before, and acted like it was still a problem if the result was good writing.</p><p>It is a problem, and continues to be a problem even with all the ways I’ve learned to work around it. There’s a limit to how much I can afford to manage it without just having to shut myself up unless I have an undetermined amount of time that adds up to enough. Even in the much less polished efforts of a post, that’s always a factor. If I run out of focus or time or energy before I have something I want to post, that may be the end of it. It’s pretty frustrating sometimes.</p><p>I know I could cut this down and rework it to be more directly on topic. In fact, I already have several times. I’m done inside and running short on time anyway, regardless of whether the post is as clear and direct as I’d like.</p><p>In conclusion, I feel you. Me too.</p>
Untempered Steel 🇺🇦<p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention">@<span>actuallyautistic</span></a></span> I am both autistic and <a href="https://mastodon.ie/tags/NVLD" class="mention hashtag" rel="tag">#<span>NVLD</span></a> so my experiences and traits are probably a-typical. Metaphor and verbal abstractions are the very thing I move in and breath, I also suck at math, crappy handwriting, this is NVLD. I get hyper focused on topics, to exclusion of all else, and then suddenly drop them, I stim (sometimes), can get overwhelmed by sensory input, these traits are more autistic. I have other shared traits which are more to do with social interactions &amp; clumsiness</p>
Untempered Steel 🇺🇦<p><span class="h-card" translate="no"><a href="https://mastodon.ie/@devxvda" class="u-url mention">@<span>devxvda</span></a></span> I personally hesitate to use the ActuallyAutistic tag, because professionals have diagnosed me with both <a href="https://mastodon.ie/tags/NVLD" class="mention hashtag" rel="tag">#<span>NVLD</span></a> and <a href="https://mastodon.ie/tags/autism" class="mention hashtag" rel="tag">#<span>autism</span></a>. I don&#39;t want to offend anybody. However, sound loudness does not matter to me, in the case of something I enjoy like music. Something like a pet bird screeching or kids arguing, drive me into a type of mental shutdown, I am not sure why that is, obviously my brain is processing the two things differently.</p>
Untempered Steel 🇺🇦<p>Making an attempt at <a href="https://mastodon.ie/tags/introductions" class="mention hashtag" rel="tag">#<span>introductions</span></a> I am from Ireland, in my mid-40s cis-male, I&#39;m on the <a href="https://mastodon.ie/tags/autism" class="mention hashtag" rel="tag">#<span>autism</span></a> spectrum and also have <a href="https://mastodon.ie/tags/NVLD" class="mention hashtag" rel="tag">#<span>NVLD</span></a>. I am a libertarian socialist by political inclination. I love <a href="https://mastodon.ie/tags/music" class="mention hashtag" rel="tag">#<span>music</span></a> , <a href="https://mastodon.ie/tags/philosophy" class="mention hashtag" rel="tag">#<span>philosophy</span></a> and <a href="https://mastodon.ie/tags/science" class="mention hashtag" rel="tag">#<span>science</span></a> and also things of a more spiritual nature, especially <a href="https://mastodon.ie/tags/Buddhism" class="mention hashtag" rel="tag">#<span>Buddhism</span></a> . I while am interested in abstract philosophical thought, my main interests are in <a href="https://mastodon.ie/tags/politics" class="mention hashtag" rel="tag">#<span>politics</span></a> and <a href="https://mastodon.ie/tags/social" class="mention hashtag" rel="tag">#<span>social</span></a> issues.</p>
Autism News International<p>2022 in Review: Advice from Self-Advocates, w/ Jude Morrow, Tom Oliver, Jhillika Kumar &amp; more | EDB 284 <br> <br> <a href="https://differentbrains.org/2022-in-review-advice-from-self-advocates-w-jude-morrow-tom-oliver-jhillika-kumar-more-edb-284/" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="ellipsis">differentbrains.org/2022-in-re</span><span class="invisible">view-advice-from-self-advocates-w-jude-morrow-tom-oliver-jhillika-kumar-more-edb-284/</span></a> <br> <br> <a href="https://aspiechattr.me/tags/Neurodiversity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Neurodiversity</span></a> <a href="https://aspiechattr.me/tags/Dyslexia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Dyslexia</span></a> <a href="https://aspiechattr.me/tags/Autism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Autism</span></a> <a href="https://aspiechattr.me/tags/Video" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Video</span></a> <a href="https://aspiechattr.me/tags/ADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ADHD</span></a> <a href="https://aspiechattr.me/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a> <a href="https://aspiechattr.me/tags/EDB" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDB</span></a></p>
Fediverse Frank :superman2025:<p><span class="h-card"><a href="https://beige.party/@robotrecall" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>robotrecall</span></a></span> it’s so hard to find any useful resources about <a href="https://ramblings.social/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a>, and running into garbage like that is just demoralizing.</p>
Sean Lake: famous ballet :bc:<p>I’m interested in finding out about developments in NVLD (nonverbal learning disorder) research and understanding. I’m in favor of rethinking the name, as it does tend to make people think that I’m saying I am nonverbal. That’s very confusing, as I’m quite noticeably hyperverbal. It’s supposed to mean that the disability does not affect verbal skills, but that’s not the notion it’s giving people.</p><p>I like the idea of the name “visual-spatial learning disorder”, but I do have an issue. Trying to look it up is not going well. I keep running into this same comically awful quote and just have to stop:</p><p>“‘NVLD is a huge and hidden public health burden,’ said Jeffrey Lieberman, Chair of Psychiatry at the Columbia University Vagelos College of Physicians and Surgeons and Director of the New York State Psychiatric Institute. ‘This important work might never have come to light if not for the support of dedicated advocate [sic] and their philanthropic support. We hope that these findings raise awareness of the disorder and lead to an understanding of its neurobiology and better treatments’”</p><p>Burden. Yep. Haven’t heard that one before like, all of the time from everywhere, though usually implied because most people would at least hesitate to come out and say it?? Thanks, Jeffrey, for using your influence to say the quiet part out loud so we can be understood as an explicit public health burden, secretly sucking the resources from society like needy vampires.</p><p>The research is now framed not in terms of understanding and helping people with the disorder because we’re human beings who deserve to have dignity and control of our lives, but because we are a burden on society. Shit, dude, wtf are you even doing. I’m not feeling especially inclined to give him the benefit of the doubt that maybe it was taken out of context. It would have to be one hell of a context, like up until that sentence he was talking about radically rethinking the medicalization of neurodivergence but stopped there to talk about how things stand under the current system, which seems Unlikely.</p><p>Especially since he then goes on to talk about how great advocates and philanthropists are. Advocates are fantastic, that much is true. But they never belong in a higher priority place in the conversation than people who actually have the disorder.</p><p>Nothing about us without us.</p><p><a href="https://beige.party/tags/nvld" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>nvld</span></a> <a href="https://beige.party/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a></p>
Sean Lake: famous ballet :bc:<p>The real possibility that there are people out there who have NVLD but are diagnosed with ADHD is very much hitting me right now. The signs of the two are easily similar enough for this confusion to be possible. I would probably have an ADHD diagnosis myself if I’d seen a doctor who wasn’t as familiar with NVLD.</p><p>And in some ways, I ache for that. If I were just a little bit misdiagnosed, all the medications and most of the accommodations would be the same, but I would have a community. But that’s not really what I want. I want the community desperately, but not under a less accurate name.</p><p>I grieve for what I might have if not for the lack of NVLD awareness, in the medical field and in general.</p><p>Where are you, my hyperverbal siblings? It’s so lonely without you.</p><p><a href="https://beige.party/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a> <a href="https://beige.party/tags/ADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ADHD</span></a> <a href="https://beige.party/tags/neurodiversity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neurodiversity</span></a></p>
Sean Lake: famous ballet :bc:<p><a href="https://beige.party/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a> means I’m perpetually lost in space and time, clattering noisily in disjointed bits through the regular cycles of life, often found collapsed from exhaustion in places and postures deemed inhospitable, rarely entirely present. I don’t know how to extract myself in full, or whether I want to, or if I could.</p><p>I do know that the literal act of getting lost invites the metaphorical so firmly that very little short of total exhaustion can deny it. Lost becomes transported, enraptured and carried away, such that you wouldn’t recognize the signposts even if you could spare them a thought, because everything looks different from here. The currents are inevitable, always pulling. If you have the energy to ride instead of drift, they are flow.</p><p>I can’t show people what the world looks like when you’re a splintered creature cohering only in the center of a sufficiently powerful current, but I can certainly tell them about it. By definition, I tend to have a lot of words.</p><p><a href="https://beige.party/tags/neurodiversity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neurodiversity</span></a></p>
Sean Lake: famous ballet :bc:<p>Nobody had heard of my learning disability until Will Smith hit Chris Rock, and then suddenly so many people had entire articles of bold assertions about how we literally can’t interpret any visual information I guess, which would have been way funnier if it were not connected to an assault, and now I only wonder if any of those people still remember ever seeing the letters <a href="https://beige.party/tags/NVLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NVLD</span></a> together in that order anymore.</p>