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#AcquiredDisability

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deantoir_ceardaiochta<p>An unforseen benefit of my <a href="https://mastodon.ie/tags/accessable" class="mention hashtag" rel="tag">#<span>accessable</span></a> shower has been that it helps me do some of the downstairs housework. <a href="https://mastodon.ie/tags/AccesabilityBenefitsEveryone" class="mention hashtag" rel="tag">#<span>AccesabilityBenefitsEveryone</span></a> <a href="https://mastodon.ie/tags/disability" class="mention hashtag" rel="tag">#<span>disability</span></a> <a href="https://mastodon.ie/tags/acquireddisability" class="mention hashtag" rel="tag">#<span>acquireddisability</span></a></p>
deantoir_ceardaiochta<p>I&#39;m unimpressed with the idea of a minister for children and people with disabilities. I simply see it as more <a href="https://mastodon.ie/tags/infantising" class="mention hashtag" rel="tag">#<span>infantising</span></a> of disabled people. <a href="https://mastodon.ie/tags/disability" class="mention hashtag" rel="tag">#<span>disability</span></a> <a href="https://mastodon.ie/tags/acquireddisability" class="mention hashtag" rel="tag">#<span>acquireddisability</span></a> <a href="https://mastodon.ie/tags/irishpolitics" class="mention hashtag" rel="tag">#<span>irishpolitics</span></a> <a href="https://mastodon.ie/tags/mastodaoine" class="mention hashtag" rel="tag">#<span>mastodaoine</span></a> <a href="https://mastodon.ie/tags/politics" class="mention hashtag" rel="tag">#<span>politics</span></a></p>
deantoir_ceardaiochta<p>I&#39;ve been very open about my <a href="https://mastodon.ie/tags/adhd" class="mention hashtag" rel="tag">#<span>adhd</span></a> <a href="https://mastodon.ie/tags/asd" class="mention hashtag" rel="tag">#<span>asd</span></a> <a href="https://mastodon.ie/tags/dyscalculia" class="mention hashtag" rel="tag">#<span>dyscalculia</span></a> diagnosis, which was a surprise to absolutely nobody who knows me. I&#39;m also doing a masters so I can work in an area where I can help teens. I&#39;ve been working super hard on my physical health to allow me to do this <a href="https://mastodon.ie/tags/acquireddisability" class="mention hashtag" rel="tag">#<span>acquireddisability</span></a> . As a result this year I am physically able to participate in a fundraiser! While I may not have much finances I CAN do this to help. I&#39;d appreciate your support <a href="https://mastodon.ie/tags/mastodaoine" class="mention hashtag" rel="tag">#<span>mastodaoine</span></a> </p><p><a href="https://autismassistancedogsireland.enthuse.com/pf/jennie-boylan/post/10949377" target="_blank" rel="nofollow noopener noreferrer" translate="no"><span class="invisible">https://</span><span class="ellipsis">autismassistancedogsireland.en</span><span class="invisible">thuse.com/pf/jennie-boylan/post/10949377</span></a></p>
deantoir_ceardaiochta<p>With enough pain meds, caffeine and sugar I can do all things(once the panic and hyper focus kick in)! but will pay the iron price tomorrow <a href="https://mastodon.ie/tags/adultstudent" class="mention hashtag" rel="tag">#<span>adultstudent</span></a> <a href="https://mastodon.ie/tags/university" class="mention hashtag" rel="tag">#<span>university</span></a> <a href="https://mastodon.ie/tags/mastodaoine" class="mention hashtag" rel="tag">#<span>mastodaoine</span></a> <a href="https://mastodon.ie/tags/AcquiredDisability" class="mention hashtag" rel="tag">#<span>AcquiredDisability</span></a> <a href="https://mastodon.ie/tags/chronicpain" class="mention hashtag" rel="tag">#<span>chronicpain</span></a> <a href="https://mastodon.ie/tags/Fibromyalgia" class="mention hashtag" rel="tag">#<span>Fibromyalgia</span></a> <a href="https://mastodon.ie/tags/Arthritis" class="mention hashtag" rel="tag">#<span>Arthritis</span></a> <a href="https://mastodon.ie/tags/Hypermobility" class="mention hashtag" rel="tag">#<span>Hypermobility</span></a> <a href="https://mastodon.ie/tags/adhd" class="mention hashtag" rel="tag">#<span>adhd</span></a></p>
deantoir_ceardaiochta<p>We were discussing the concept of &quot;self&quot; in college one day and my lecturer was confused because I was describing my conscious self, subconscious self and body as three separate beings. It&#39;s something I&#39;ve started doing since <a href="https://mastodon.ie/tags/AcquiredDisability" class="mention hashtag" rel="tag">#<span>AcquiredDisability</span></a> because my conscious self doesn&#39;t have full control of my body at all times <a href="https://mastodon.ie/tags/fibromyalgia" class="mention hashtag" rel="tag">#<span>fibromyalgia</span></a> then there is sometimes arguments between my <a href="https://mastodon.ie/tags/subconscious" class="mention hashtag" rel="tag">#<span>subconscious</span></a> (which I call my os) and <a href="https://mastodon.ie/tags/conscious" class="mention hashtag" rel="tag">#<span>conscious</span></a> .</p>
deantoir_ceardaiochta<p>I will very often recommend <a href="https://mastodon.ie/tags/SpoonTheory" class="mention hashtag" rel="tag">#<span>SpoonTheory</span></a> to anyone recently diagnosed or struggling with a condition that causes <a href="https://mastodon.ie/tags/ChronicFatigue" class="mention hashtag" rel="tag">#<span>ChronicFatigue</span></a> . Why? Because context is everything and usually ppl with these conditions are told to &quot;pace yourself&quot; with zero context. What is pacing to someone who used to do all the things?Its like waking up in someone else&#39;s broken body and not having a user manual. <a href="https://mastodon.ie/tags/AcquiredDisability" class="mention hashtag" rel="tag">#<span>AcquiredDisability</span></a> <a href="https://mastodon.ie/tags/fibromyalgia" class="mention hashtag" rel="tag">#<span>fibromyalgia</span></a> <a href="https://mastodon.ie/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mastodon.ie/tags/ChronicFatigue" class="mention hashtag" rel="tag">#<span>ChronicFatigue</span></a> <a href="https://mastodon.ie/tags/ChronicPain" class="mention hashtag" rel="tag">#<span>ChronicPain</span></a> <a href="https://mastodon.ie/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a></p>
deantoir_ceardaiochta<p><span class="h-card" translate="no"><a href="https://mastodonapp.uk/@tgent_fens" class="u-url mention">@<span>tgent_fens</span></a></span> <span class="h-card" translate="no"><a href="https://med-mastodon.com/@LongCovidPharmD" class="u-url mention">@<span>LongCovidPharmD</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention">@<span>longcovid</span></a></span> I&#39;m seeing a lot of <a href="https://mastodon.ie/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> sufferers falling into the trap of alt medicines that so many with <a href="https://mastodon.ie/tags/AcquiredDisability" class="mention hashtag" rel="tag">#<span>AcquiredDisability</span></a> fall into too. It can be a cripplingly expensive and often fruitless journey. There are a few <a href="https://mastodon.ie/tags/ScienceBased" class="mention hashtag" rel="tag">#<span>ScienceBased</span></a> and <a href="https://mastodon.ie/tags/WooFree" class="mention hashtag" rel="tag">#<span>WooFree</span></a> groups out there for ppl with conditions like <a href="https://mastodon.ie/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> and <a href="https://mastodon.ie/tags/fibromyalgia" class="mention hashtag" rel="tag">#<span>fibromyalgia</span></a> which have similar symptoms to <a href="https://mastodon.ie/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> they are worth talking to. Also if you haven&#39;t heard of <a href="https://mastodon.ie/tags/SpoonTheory" class="mention hashtag" rel="tag">#<span>SpoonTheory</span></a> it&#39;s worth looking up</p>
Sarah Casey<p>Still on Twitter, but also wandering over here too given the general state of things these days...</p><p>Looking forward to engaging on:<br /><a href="https://mastodon.ie/tags/neuropsychology" class="mention hashtag" rel="tag">#<span>neuropsychology</span></a> <br /><a href="https://mastodon.ie/tags/neurorehabilitation" class="mention hashtag" rel="tag">#<span>neurorehabilitation</span></a> <br /><a href="https://mastodon.ie/tags/rehabilitation" class="mention hashtag" rel="tag">#<span>rehabilitation</span></a><br /><a href="https://mastodon.ie/tags/decisionmaking" class="mention hashtag" rel="tag">#<span>decisionmaking</span></a> <br /><a href="https://mastodon.ie/tags/ADMA" class="mention hashtag" rel="tag">#<span>ADMA</span></a><br /><a href="https://mastodon.ie/tags/humanrights" class="mention hashtag" rel="tag">#<span>humanrights</span></a> <br /><a href="https://mastodon.ie/tags/psychology" class="mention hashtag" rel="tag">#<span>psychology</span></a><br /><a href="https://mastodon.ie/tags/disability" class="mention hashtag" rel="tag">#<span>disability</span></a> <br /><a href="https://mastodon.ie/tags/acquireddisability" class="mention hashtag" rel="tag">#<span>acquireddisability</span></a><br /><a href="https://mastodon.ie/tags/braininjury" class="mention hashtag" rel="tag">#<span>braininjury</span></a> <br /><a href="https://mastodon.ie/tags/clinicalpsychology" class="mention hashtag" rel="tag">#<span>clinicalpsychology</span></a> <br /><a href="https://mastodon.ie/tags/cognition" class="mention hashtag" rel="tag">#<span>cognition</span></a> <br /><a href="https://mastodon.ie/tags/neuroscience" class="mention hashtag" rel="tag">#<span>neuroscience</span></a> <br /><a href="https://mastodon.ie/tags/leadership" class="mention hashtag" rel="tag">#<span>leadership</span></a> <br /><a href="https://mastodon.ie/tags/clinicalleadership" class="mention hashtag" rel="tag">#<span>clinicalleadership</span></a><br /><a href="https://mastodon.ie/tags/healthcare" class="mention hashtag" rel="tag">#<span>healthcare</span></a><br /><a href="https://mastodon.ie/tags/PSI" class="mention hashtag" rel="tag">#<span>PSI</span></a> <br /><a href="https://mastodon.ie/tags/DONPSI" class="mention hashtag" rel="tag">#<span>DONPSI</span></a></p><p>And also <a href="https://mastodon.ie/tags/humour" class="mention hashtag" rel="tag">#<span>humour</span></a> <a href="https://mastodon.ie/tags/animals" class="mention hashtag" rel="tag">#<span>animals</span></a> <a href="https://mastodon.ie/tags/stories" class="mention hashtag" rel="tag">#<span>stories</span></a> <a href="https://mastodon.ie/tags/goodcraic" class="mention hashtag" rel="tag">#<span>goodcraic</span></a> and more...</p>
deantoir_ceardaiochta<p>Oooof right in the feels <a href="https://mastodon.ie/tags/AcquiredDisability" class="mention hashtag" rel="tag">#<span>AcquiredDisability</span></a> <a href="https://mastodon.ie/tags/fibromyalgia" class="mention hashtag" rel="tag">#<span>fibromyalgia</span></a> <a href="https://mastodon.ie/tags/hypermobility" class="mention hashtag" rel="tag">#<span>hypermobility</span></a> <a href="https://mastodon.ie/tags/ChronicPain" class="mention hashtag" rel="tag">#<span>ChronicPain</span></a> <a href="https://mastodon.ie/tags/ChronicFatigue" class="mention hashtag" rel="tag">#<span>ChronicFatigue</span></a> <a href="https://mastodon.ie/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a></p>
sara (they/she)<p>I've been watching a lot of <a href="https://c.im/tags/TimeLoop" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TimeLoop</span></a> <a href="https://c.im/tags/Films" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Films</span></a> lately with my wife. Just watched Everything Everywhere All At Once, Palm Springs, &amp; The Map of Tiny Perfect Things. I've been hyper fixated on time loops &amp; <a href="https://c.im/tags/QuantumPhysics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>QuantumPhysics</span></a> and <a href="https://c.im/tags/multiverse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>multiverse</span></a> and just having fun thinking and imagining. I love <a href="https://c.im/tags/SciFi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SciFi</span></a>. And E.E.A.A<br>O is now my favorite film ever, hands down. </p><p>So, right now as I am laying in bed thinking about how difficult it is to live with <a href="https://c.im/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> and wondering if I will I ever feel 'healthy' again, it hit me -- how living with an <a href="https://c.im/tags/AcquiredDisability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AcquiredDisability</span></a> or chronic illness is kind of like living in a time loop? </p><p>The days go by so slowly, but somehow months and years are over in a blur and I can't remember them at all. Much of the same happens each day. I have little choice in what I can actually do. It feels neverending. And I yearn to return to The Before. While not knowing if it'll ever be possible to get there.</p><p>Yoinks!</p><p> <a href="https://c.im/tags/EverythingEverywhereAllAtOnce" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EverythingEverywhereAllAtOnce</span></a> <a href="https://c.im/tags/MapOfTinyPerfectThings" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MapOfTinyPerfectThings</span></a> <a href="https://c.im/tags/PalmSprings" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PalmSprings</span></a> <a href="https://c.im/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a> <a href="https://c.im/tags/SpoonieLife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SpoonieLife</span></a> <a href="https://c.im/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabled</span></a> <a href="https://c.im/tags/pwme" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pwme</span></a> <a href="https://c.im/tags/pwlc" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pwlc</span></a> <a href="https://c.im/tags/fblc" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fblc</span></a> <a href="https://c.im/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://c.im/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongHauler</span></a> <a href="https://c.im/tags/InMyFeels" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InMyFeels</span></a></p>