deantoir_ceardaiochta<p>An unforseen benefit of my <a href="https://mastodon.ie/tags/accessable" class="mention hashtag" rel="tag">#<span>accessable</span></a> shower has been that it helps me do some of the downstairs housework. <a href="https://mastodon.ie/tags/AccesabilityBenefitsEveryone" class="mention hashtag" rel="tag">#<span>AccesabilityBenefitsEveryone</span></a> <a href="https://mastodon.ie/tags/disability" class="mention hashtag" rel="tag">#<span>disability</span></a> <a href="https://mastodon.ie/tags/acquireddisability" class="mention hashtag" rel="tag">#<span>acquireddisability</span></a></p>
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#AcquiredDisability
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deantoir_ceardaiochta<p>I'm unimpressed with the idea of a minister for children and people with disabilities. I simply see it as more <a href="https://mastodon.ie/tags/infantising" class="mention hashtag" rel="tag">#<span>infantising</span></a> of disabled people. <a href="https://mastodon.ie/tags/disability" class="mention hashtag" rel="tag">#<span>disability</span></a> <a href="https://mastodon.ie/tags/acquireddisability" class="mention hashtag" rel="tag">#<span>acquireddisability</span></a> <a href="https://mastodon.ie/tags/irishpolitics" class="mention hashtag" rel="tag">#<span>irishpolitics</span></a> <a href="https://mastodon.ie/tags/mastodaoine" class="mention hashtag" rel="tag">#<span>mastodaoine</span></a> <a href="https://mastodon.ie/tags/politics" class="mention hashtag" rel="tag">#<span>politics</span></a></p>
deantoir_ceardaiochta<p>I've been very open about my <a href="https://mastodon.ie/tags/adhd" class="mention hashtag" rel="tag">#<span>adhd</span></a> <a href="https://mastodon.ie/tags/asd" class="mention hashtag" rel="tag">#<span>asd</span></a> <a href="https://mastodon.ie/tags/dyscalculia" class="mention hashtag" rel="tag">#<span>dyscalculia</span></a> diagnosis, which was a surprise to absolutely nobody who knows me. I'm also doing a masters so I can work in an area where I can help teens. I've been working super hard on my physical health to allow me to do this <a href="https://mastodon.ie/tags/acquireddisability" class="mention hashtag" rel="tag">#<span>acquireddisability</span></a> . As a result this year I am physically able to participate in a fundraiser! While I may not have much finances I CAN do this to help. I'd appreciate your support <a href="https://mastodon.ie/tags/mastodaoine" class="mention hashtag" rel="tag">#<span>mastodaoine</span></a> </p><p><a href="https://autismassistancedogsireland.enthuse.com/pf/jennie-boylan/post/10949377" target="_blank" rel="nofollow noopener noreferrer" translate="no"><span class="invisible">https://</span><span class="ellipsis">autismassistancedogsireland.en</span><span class="invisible">thuse.com/pf/jennie-boylan/post/10949377</span></a></p>
deantoir_ceardaiochta<p>With enough pain meds, caffeine and sugar I can do all things(once the panic and hyper focus kick in)! but will pay the iron price tomorrow <a href="https://mastodon.ie/tags/adultstudent" class="mention hashtag" rel="tag">#<span>adultstudent</span></a> <a href="https://mastodon.ie/tags/university" class="mention hashtag" rel="tag">#<span>university</span></a> <a href="https://mastodon.ie/tags/mastodaoine" class="mention hashtag" rel="tag">#<span>mastodaoine</span></a> <a href="https://mastodon.ie/tags/AcquiredDisability" class="mention hashtag" rel="tag">#<span>AcquiredDisability</span></a> <a href="https://mastodon.ie/tags/chronicpain" class="mention hashtag" rel="tag">#<span>chronicpain</span></a> <a href="https://mastodon.ie/tags/Fibromyalgia" class="mention hashtag" rel="tag">#<span>Fibromyalgia</span></a> <a href="https://mastodon.ie/tags/Arthritis" class="mention hashtag" rel="tag">#<span>Arthritis</span></a> <a href="https://mastodon.ie/tags/Hypermobility" class="mention hashtag" rel="tag">#<span>Hypermobility</span></a> <a href="https://mastodon.ie/tags/adhd" class="mention hashtag" rel="tag">#<span>adhd</span></a></p>
deantoir_ceardaiochta<p>We were discussing the concept of "self" in college one day and my lecturer was confused because I was describing my conscious self, subconscious self and body as three separate beings. It's something I've started doing since <a href="https://mastodon.ie/tags/AcquiredDisability" class="mention hashtag" rel="tag">#<span>AcquiredDisability</span></a> because my conscious self doesn't have full control of my body at all times <a href="https://mastodon.ie/tags/fibromyalgia" class="mention hashtag" rel="tag">#<span>fibromyalgia</span></a> then there is sometimes arguments between my <a href="https://mastodon.ie/tags/subconscious" class="mention hashtag" rel="tag">#<span>subconscious</span></a> (which I call my os) and <a href="https://mastodon.ie/tags/conscious" class="mention hashtag" rel="tag">#<span>conscious</span></a> .</p>
deantoir_ceardaiochta<p>I will very often recommend <a href="https://mastodon.ie/tags/SpoonTheory" class="mention hashtag" rel="tag">#<span>SpoonTheory</span></a> to anyone recently diagnosed or struggling with a condition that causes <a href="https://mastodon.ie/tags/ChronicFatigue" class="mention hashtag" rel="tag">#<span>ChronicFatigue</span></a> . Why? Because context is everything and usually ppl with these conditions are told to "pace yourself" with zero context. What is pacing to someone who used to do all the things?Its like waking up in someone else's broken body and not having a user manual. <a href="https://mastodon.ie/tags/AcquiredDisability" class="mention hashtag" rel="tag">#<span>AcquiredDisability</span></a> <a href="https://mastodon.ie/tags/fibromyalgia" class="mention hashtag" rel="tag">#<span>fibromyalgia</span></a> <a href="https://mastodon.ie/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mastodon.ie/tags/ChronicFatigue" class="mention hashtag" rel="tag">#<span>ChronicFatigue</span></a> <a href="https://mastodon.ie/tags/ChronicPain" class="mention hashtag" rel="tag">#<span>ChronicPain</span></a> <a href="https://mastodon.ie/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a></p>
deantoir_ceardaiochta<p><span class="h-card" translate="no"><a href="https://mastodonapp.uk/@tgent_fens" class="u-url mention">@<span>tgent_fens</span></a></span> <span class="h-card" translate="no"><a href="https://med-mastodon.com/@LongCovidPharmD" class="u-url mention">@<span>LongCovidPharmD</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention">@<span>longcovid</span></a></span> I'm seeing a lot of <a href="https://mastodon.ie/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> sufferers falling into the trap of alt medicines that so many with <a href="https://mastodon.ie/tags/AcquiredDisability" class="mention hashtag" rel="tag">#<span>AcquiredDisability</span></a> fall into too. It can be a cripplingly expensive and often fruitless journey. There are a few <a href="https://mastodon.ie/tags/ScienceBased" class="mention hashtag" rel="tag">#<span>ScienceBased</span></a> and <a href="https://mastodon.ie/tags/WooFree" class="mention hashtag" rel="tag">#<span>WooFree</span></a> groups out there for ppl with conditions like <a href="https://mastodon.ie/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> and <a href="https://mastodon.ie/tags/fibromyalgia" class="mention hashtag" rel="tag">#<span>fibromyalgia</span></a> which have similar symptoms to <a href="https://mastodon.ie/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> they are worth talking to. Also if you haven't heard of <a href="https://mastodon.ie/tags/SpoonTheory" class="mention hashtag" rel="tag">#<span>SpoonTheory</span></a> it's worth looking up</p>
Sarah Casey<p>Still on Twitter, but also wandering over here too given the general state of things these days...</p><p>Looking forward to engaging on:<br /><a href="https://mastodon.ie/tags/neuropsychology" class="mention hashtag" rel="tag">#<span>neuropsychology</span></a> <br /><a href="https://mastodon.ie/tags/neurorehabilitation" class="mention hashtag" rel="tag">#<span>neurorehabilitation</span></a> <br /><a href="https://mastodon.ie/tags/rehabilitation" class="mention hashtag" rel="tag">#<span>rehabilitation</span></a><br /><a href="https://mastodon.ie/tags/decisionmaking" class="mention hashtag" rel="tag">#<span>decisionmaking</span></a> <br /><a href="https://mastodon.ie/tags/ADMA" class="mention hashtag" rel="tag">#<span>ADMA</span></a><br /><a href="https://mastodon.ie/tags/humanrights" class="mention hashtag" rel="tag">#<span>humanrights</span></a> <br /><a href="https://mastodon.ie/tags/psychology" class="mention hashtag" rel="tag">#<span>psychology</span></a><br /><a href="https://mastodon.ie/tags/disability" class="mention hashtag" rel="tag">#<span>disability</span></a> <br /><a href="https://mastodon.ie/tags/acquireddisability" class="mention hashtag" rel="tag">#<span>acquireddisability</span></a><br /><a href="https://mastodon.ie/tags/braininjury" class="mention hashtag" rel="tag">#<span>braininjury</span></a> <br /><a href="https://mastodon.ie/tags/clinicalpsychology" class="mention hashtag" rel="tag">#<span>clinicalpsychology</span></a> <br /><a href="https://mastodon.ie/tags/cognition" class="mention hashtag" rel="tag">#<span>cognition</span></a> <br /><a href="https://mastodon.ie/tags/neuroscience" class="mention hashtag" rel="tag">#<span>neuroscience</span></a> <br /><a href="https://mastodon.ie/tags/leadership" class="mention hashtag" rel="tag">#<span>leadership</span></a> <br /><a href="https://mastodon.ie/tags/clinicalleadership" class="mention hashtag" rel="tag">#<span>clinicalleadership</span></a><br /><a href="https://mastodon.ie/tags/healthcare" class="mention hashtag" rel="tag">#<span>healthcare</span></a><br /><a href="https://mastodon.ie/tags/PSI" class="mention hashtag" rel="tag">#<span>PSI</span></a> <br /><a href="https://mastodon.ie/tags/DONPSI" class="mention hashtag" rel="tag">#<span>DONPSI</span></a></p><p>And also <a href="https://mastodon.ie/tags/humour" class="mention hashtag" rel="tag">#<span>humour</span></a> <a href="https://mastodon.ie/tags/animals" class="mention hashtag" rel="tag">#<span>animals</span></a> <a href="https://mastodon.ie/tags/stories" class="mention hashtag" rel="tag">#<span>stories</span></a> <a href="https://mastodon.ie/tags/goodcraic" class="mention hashtag" rel="tag">#<span>goodcraic</span></a> and more...</p>
deantoir_ceardaiochta<p>Oooof right in the feels <a href="https://mastodon.ie/tags/AcquiredDisability" class="mention hashtag" rel="tag">#<span>AcquiredDisability</span></a> <a href="https://mastodon.ie/tags/fibromyalgia" class="mention hashtag" rel="tag">#<span>fibromyalgia</span></a> <a href="https://mastodon.ie/tags/hypermobility" class="mention hashtag" rel="tag">#<span>hypermobility</span></a> <a href="https://mastodon.ie/tags/ChronicPain" class="mention hashtag" rel="tag">#<span>ChronicPain</span></a> <a href="https://mastodon.ie/tags/ChronicFatigue" class="mention hashtag" rel="tag">#<span>ChronicFatigue</span></a> <a href="https://mastodon.ie/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a></p>
sara (they/she)<p>I've been watching a lot of <a href="https://c.im/tags/TimeLoop" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TimeLoop</span></a> <a href="https://c.im/tags/Films" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Films</span></a> lately with my wife. Just watched Everything Everywhere All At Once, Palm Springs, & The Map of Tiny Perfect Things. I've been hyper fixated on time loops & <a href="https://c.im/tags/QuantumPhysics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>QuantumPhysics</span></a> and <a href="https://c.im/tags/multiverse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>multiverse</span></a> and just having fun thinking and imagining. I love <a href="https://c.im/tags/SciFi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SciFi</span></a>. And E.E.A.A<br>O is now my favorite film ever, hands down. </p><p>So, right now as I am laying in bed thinking about how difficult it is to live with <a href="https://c.im/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> and wondering if I will I ever feel 'healthy' again, it hit me -- how living with an <a href="https://c.im/tags/AcquiredDisability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AcquiredDisability</span></a> or chronic illness is kind of like living in a time loop? </p><p>The days go by so slowly, but somehow months and years are over in a blur and I can't remember them at all. Much of the same happens each day. I have little choice in what I can actually do. It feels neverending. And I yearn to return to The Before. While not knowing if it'll ever be possible to get there.</p><p>Yoinks!</p><p> <a href="https://c.im/tags/EverythingEverywhereAllAtOnce" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EverythingEverywhereAllAtOnce</span></a> <a href="https://c.im/tags/MapOfTinyPerfectThings" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MapOfTinyPerfectThings</span></a> <a href="https://c.im/tags/PalmSprings" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PalmSprings</span></a> <a href="https://c.im/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a> <a href="https://c.im/tags/SpoonieLife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SpoonieLife</span></a> <a href="https://c.im/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabled</span></a> <a href="https://c.im/tags/pwme" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pwme</span></a> <a href="https://c.im/tags/pwlc" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pwlc</span></a> <a href="https://c.im/tags/fblc" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fblc</span></a> <a href="https://c.im/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://c.im/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongHauler</span></a> <a href="https://c.im/tags/InMyFeels" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InMyFeels</span></a></p>
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