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#hypermobileEhlersDanlosSyndrome

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Inoru<p>Hey. Help us pay for my new wheelchair? I'm desperately hoping the issues with my current chair are that it's old and battered and possibly needs more in repairs than would be worth it (it's better than NOT having one, don't get me wrong...). But $1,100 (rounded slightly up) is a dear price even if cheaper than we'd ever get anything custom.</p><p>We're hoping to pay it off in chunks, since we used a credit card, but. The assurance of *having* the money to pay it off would be awesome - and y'all can say you helped buy my chair! Win/win!</p><p>Current goal is at 0/$100</p><p>(Unless that's changed literally while I've been typing 🤣)</p><p>My cashapp is $Inoru, spouse's CashApp is $ceahhettan and his <br>Venmo is @/californiummm; ask them for paypal/zelle. Comment wheelchair or a Blue wheelchair emoji with specifically-for-this donations! Any amount helps and I/we appreciate!</p><p>&lt;*wiggles in New Wheelchair excitement*&gt;</p><p><a href="https://blorbo.social/tags/crowdfund" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>crowdfund</span></a> <a href="https://blorbo.social/tags/crowdfunding" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>crowdfunding</span></a> <a href="https://blorbo.social/tags/transcrowdfund" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>transcrowdfund</span></a> <a href="https://blorbo.social/tags/transcrowdfunding" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>transcrowdfunding</span></a> <a href="https://blorbo.social/tags/disabledcrowdfund" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabledcrowdfund</span></a> <a href="https://blorbo.social/tags/disabledcrowdfunding" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabledcrowdfunding</span></a> <a href="https://blorbo.social/tags/deafcrowdfund" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>deafcrowdfund</span></a> <a href="https://blorbo.social/tags/deafcrowdfunding" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>deafcrowdfunding</span></a> <a href="https://blorbo.social/tags/helpfolkslive" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>helpfolkslive</span></a> <a href="https://blorbo.social/tags/HelpFolksLive2025" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HelpFolksLive2025</span></a> <a href="https://blorbo.social/tags/mutualaid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mutualaid</span></a> <a href="https://blorbo.social/tags/MutualAidRequest" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MutualAidRequest</span></a> <a href="https://blorbo.social/tags/moneyhelp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>moneyhelp</span></a> <a href="https://blorbo.social/tags/ambulatorywheelchairuser" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ambulatorywheelchairuser</span></a> <a href="https://blorbo.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hEDS</span></a> <a href="https://blorbo.social/tags/hypermobility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hypermobility</span></a> <a href="https://blorbo.social/tags/hypermobileEhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hypermobileEhlersDanlosSyndrome</span></a> <a href="https://blorbo.social/tags/wheelchairuser" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>wheelchairuser</span></a> <a href="https://blorbo.social/tags/powerchair" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>powerchair</span></a> <a href="https://blorbo.social/tags/wheelchaircrowdfunding" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>wheelchaircrowdfunding</span></a> <a href="https://blorbo.social/tags/powerchaircrowdfunding" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>powerchaircrowdfunding</span></a> <a href="https://blorbo.social/tags/IsThisEnoughHashtags" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>IsThisEnoughHashtags</span></a> <a href="https://blorbo.social/tags/hashtag" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hashtag</span></a> </p><p>via <span class="h-card" translate="no"><a href="https://kolektiva.social/@camilla" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>camilla</span></a></span></p><p><a href="https://kolektiva.social/@camilla/113783600650227501" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">kolektiva.social/@camilla/1137</span><span class="invisible">83600650227501</span></a></p>
Sasyecat<p>I take Omega 3(flaxseed) it makes a huge difference in my breathing.<br><a href="https://mstdn.social/tags/HypermobileEhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HypermobileEhlersDanlosSyndrome</span></a><br><a href="https://mstdn.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hEDS</span></a><br><a href="https://www.nature.com/articles/s41598-024-58890-2" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">nature.com/articles/s41598-024</span><span class="invisible">-58890-2</span></a></p>
𝓖𝓲𝓪 𝓜𝓸𝓻𝓪 (she/her)<p>New research suggests genetic identification for <a href="https://mastodon.green/tags/eHDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eHDS</span></a> -- <a href="https://mastodon.green/tags/MTHFR" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MTHFR</span></a>. </p><p><a href="https://scitechdaily.com/bending-over-backwards-vitamin-deficiencys-surprising-role-in-double-jointedness-and-eds/" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="ellipsis">scitechdaily.com/bending-over-</span><span class="invisible">backwards-vitamin-deficiencys-surprising-role-in-double-jointedness-and-eds/</span></a></p><p>I have known since 2008 that I have this mutation because it caused such difficulty in my sister's pregnancy. To know that this may be the new diagnostic tool for <a href="https://mastodon.green/tags/HypermobileEhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HypermobileEhlersDanlosSyndrome</span></a> gives me great hope.</p><p><a href="https://mastodon.green/tags/HSD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HSD</span></a> <a href="https://mastodon.green/tags/Genetics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Genetics</span></a> <a href="https://mastodon.green/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EhlersDanlosSyndrome</span></a> <a href="https://mastodon.green/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <a href="https://mastodon.green/tags/MyEDSChallenge" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyEDSChallenge</span></a> <a href="https://mastodon.green/tags/MyHSDChallenge" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyHSDChallenge</span></a> <a href="https://mastodon.green/tags/TogetherWeDazzle" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TogetherWeDazzle</span></a> <a href="https://mastodon.green/tags/ZebraStrong" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ZebraStrong</span></a></p>
𝓖𝓲𝓪 𝓜𝓸𝓻𝓪 (she/her)<p>I’ve diligently worked my entire life to cultivate the grace with which I was not born. Only in granting myself compassion did I truly find it.</p><p>Learn more about my journey with <a href="https://mastodon.green/tags/EhlersDanlos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EhlersDanlos</span></a> and <a href="https://mastodon.green/tags/hypermobility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hypermobility</span></a> in today’s <span class="h-card"><a href="https://mastodon.social/@Huffingtonpost" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>Huffingtonpost</span></a></span>. I hope it helps someone else find an answer and perhaps hope for the future.</p><p><a href="https://www.huffpost.com/entry/broken-bones-ehlers-danlos-syndrome_n_644052d2e4b039ec4e7c66c2" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">huffpost.com/entry/broken-bone</span><span class="invisible">s-ehlers-danlos-syndrome_n_644052d2e4b039ec4e7c66c2</span></a></p><p><a href="https://mastodon.green/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EhlersDanlosSyndrome</span></a> <a href="https://mastodon.green/tags/HypermobileEhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HypermobileEhlersDanlosSyndrome</span></a> <a href="https://mastodon.green/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <a href="https://mastodon.green/tags/hEDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hEDS</span></a> <a href="https://mastodon.green/tags/BrokenBones" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>BrokenBones</span></a> <a href="https://mastodon.green/tags/BrokenAnkle" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>BrokenAnkle</span></a> <a href="https://mastodon.green/tags/BrokenJaw" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>BrokenJaw</span></a></p>
Niamh Garvey<p>Couldn&#39;t survive the pain of <a href="https://mastodon.ie/tags/AutoimmuneArthritis" class="mention hashtag" rel="tag">#<span>AutoimmuneArthritis</span></a> and <a href="https://mastodon.ie/tags/hypermobileEhlersDanlosSyndrome" class="mention hashtag" rel="tag">#<span>hypermobileEhlersDanlosSyndrome</span></a> (hEDS) without <a href="https://mastodon.ie/tags/CBD" class="mention hashtag" rel="tag">#<span>CBD</span></a> balm but by God it makes my clothes stink. Seems to cling to some materials esp jersey cotton.</p>
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