Broadwaybabyto<p>People refer to Covid in the past tense because they WANT it to be over… not because it actually IS over. </p><p>We’ve all suffered a collective trauma, and most people are refusing to process or deal with it. </p><p>A few key points people are determined to “forget”:</p><p>“During Covid” is now. </p><p>“During the pandemic” is now.</p><p>Covid is not over. </p><p>Covid IS airborne. </p><p>Masks, especially well fitted N95s, offer excellent protection </p><p>Anyone can get Long Covid, and your risk increases with each infection. </p><p>Even if your initial infection was “mild”, you could have long term damage to your vascular system, immune system, lungs and brain.</p><p>Repeat infections are NOT inevitable. </p><p>We CAN beat the pandemic together. But it involves collective effort. It involves acknowledging we’re still in a pandemic and “you do you” isn’t working. It involves caring about the air we share, and being willing to adapt. </p><p>Let’s make 2025 the year we can actually begin putting Covid in the past!</p><p><a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisnotover</span></a> <a href="https://zeroes.ca/tags/wearamask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>wearamask</span></a> <a href="https://zeroes.ca/tags/sarscov2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sarscov2</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a></p>
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#LongCovid
114 posts · 81 participants · 8 posts today
Martin Rücker<p>In Deutschland warten <a href="https://metalhead.club/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://metalhead.club/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://metalhead.club/tags/PAIS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PAIS</span></a> Betroffene seit 2023 auf die versprochene <a href="https://metalhead.club/tags/OffLabel" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>OffLabel</span></a> Medikamentenliste, in Österreich gibt es sie längst. Wie sind die Erfahrungen, warum steht keine Blutwäsche auf der Liste? Die Versorgungsforscherin und PAIS-Expertin Kathryn Hoffmann von der MedUni Wien erklärt es im <span class="h-card" translate="no"><a href="https://mastodon.social/@riffreporter" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>riffreporter</span></a></span> Interview: <a href="https://www.riffreporter.de/de/wissen/oesterreich-off-label-liste-long-covid-mecfs-interview-kathryn-hoffmann-corona" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">riffreporter.de/de/wissen/oest</span><span class="invisible">erreich-off-label-liste-long-covid-mecfs-interview-kathryn-hoffmann-corona</span></a></p>
conscientious objector🇨🇭🪂<p>Nachdem gestern über in 2024 an <a href="https://swiss.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> erkrankte Teenager berichtet wurde, meldet der <a href="https://swiss.social/tags/SRF" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SRF</span></a> heute in zwei Beiträgen: <a href="https://swiss.social/tags/Weleda" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Weleda</span></a>, der anthroposophische Hersteller, verzeichnet Rekordgewinne, und fast die Hälfte des <a href="https://swiss.social/tags/Corona" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Corona</span></a>-Impfstoffs ist abgelaufen da die <a href="https://swiss.social/tags/Pandemie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Pandemie</span></a> in 2021 schneller beendet war als gedacht.</p><p>Typisch <a href="https://swiss.social/tags/Schweiz" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Schweiz</span></a> – bekloppte Hippies aus den Bergen. 😩</p>
Tom Kindlon<p>2/<br>ME Association Press Release: Leading UK Charity invests in Canadian trial of drug treatment for ME/CFS and Long Covid</p><p><a href="https://meassociation.org.uk/2025/04/leading-uk-charity-invests-in-canadian-trial-of-drug-treatment-for-me-cfs-and-long-covid/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">meassociation.org.uk/2025/04/l</span><span class="invisible">eading-uk-charity-invests-in-canadian-trial-of-drug-treatment-for-me-cfs-and-long-covid/</span></a></p><p>Image is from latest Science for ME weekly update</p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span></p>
Tom Kindlon<p>Caffeine against persistent fatigue in <a href="https://disabled.social/tags/longCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCOVID</span></a>: a randomized clinical trial</p><p><a href="https://www.tandfonline.com/doi/abs/10.1080/21641846.2025.2483112" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">tandfonline.com/doi/abs/10.108</span><span class="invisible">0/21641846.2025.2483112</span></a></p><p>"participants met the Myalgic Encephalomyelitis: International Consensus Criteria"</p><p>"Caffeine alleviates fatigue & cognitive dysfunction in Long COVID"</p><p>What about side effects?</p><p><a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longhaulers</span></a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDBrain</span></a> <a href="https://disabled.social/tags/NeuroPASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NeuroPASC</span></a></p>
Tom Kindlon<p>US research </p><p>Dysautonomia in long COVID is prevalent and could explain the frequency of symptoms</p><p><a href="https://www.medrxiv.org/content/10.1101/2025.03.24.25324564v1" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">medrxiv.org/content/10.1101/20</span><span class="invisible">25.03.24.25324564v1</span></a></p><p><a href="https://disabled.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dysautonomia</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>dysautonomia</span></a></span> <a href="https://disabled.social/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>pots</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <br><a href="https://disabled.social/tags/CovidBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidBrain</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/covid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>covid19</span></a></span> <a href="https://disabled.social/tags/COVID%E3%83%BC19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDー19</span></a> <a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://disabled.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> <a href="https://disabled.social/tags/COVID_19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID_19</span></a> <a href="https://disabled.social/tags/SARSCoV2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SARSCoV2</span></a></p>
Tom Kindlon<p>New UK research:</p><p>Long-term effects of <a href="https://disabled.social/tags/SARSCoV2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SARSCoV2</span></a> infection on blood vessels and blood pressure</p><p><a href="https://journals.lww.com/jhypertension/abstract/9900/long_term_effects_of_sars_cov_2_infection_on_blood.658.aspx#" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">journals.lww.com/jhypertension</span><span class="invisible">/abstract/9900/long_term_effects_of_sars_cov_2_infection_on_blood.658.aspx#</span></a></p><p>"Persistent vascular dysfunction and BP increase post-COVID-19 underscore the need for further studies on the long-term risk of hypertension & cardiovascular disease”</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/covid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>covid19</span></a></span> <a href="https://disabled.social/tags/COVID%E3%83%BC19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDー19</span></a> <a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://disabled.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> <a href="https://disabled.social/tags/COVID_19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID_19</span></a> <a href="https://disabled.social/tags/SARSCoV2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SARSCoV2</span></a> <span class="h-card" translate="no"><a href="https://chirp.social/@novid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>novid@chirp.social</span></a></span> <a href="https://disabled.social/tags/novid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>novid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/novid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>novid@a.gup.pe</span></a></span> <a href="https://disabled.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a></p>
Covid Safe Furs<p>NEW: We interviewed furry artist, FWA GOH, and mutual aid organizer <br><span class="h-card" translate="no"><a href="https://meow.social/@jonathanvair" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>jonathanvair</span></a></span> to hear about his experience with <a href="https://meow.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> and how it's affected his life and work.</p><p>This is the first in our new series, Furs With Long Covid. Read it here: <a href="https://covidsafefurs.org/2025/04/06/interview-with-jonathan-vair/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">covidsafefurs.org/2025/04/06/i</span><span class="invisible">nterview-with-jonathan-vair/</span></a></p>
Alexis Bushnell<p>Managed to go out on a longer, more challenging walk for the first time since <a href="https://toot.wales/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> today.<br>It felt so good. I'm hoping that I don't crash from it tomorrow but I guess we'll see...</p><p>It was so nice to be able to do it at all.</p>
Lauralee Dukeshire<p>"A protected breath is a shared future. Honor the moment, mask up." <a href="https://mstdn.ca/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://mstdn.ca/tags/COVIDisAirborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDisAirborne</span></a> <a href="https://mstdn.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <br><a href="https://www.broadwayworld.com/article/Mask-For-Pleasure-COVID-impacted-Artists-Raise-Awareness-at-George-Clooneys-Broadway-Opening-20250406" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">broadwayworld.com/article/Mask</span><span class="invisible">-For-Pleasure-COVID-impacted-Artists-Raise-Awareness-at-George-Clooneys-Broadway-Opening-20250406</span></a></p>
Science for ME<p>Our latest News in Brief post has headlines and links to further reading for <a href="https://med-mastodon.com/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a>, <a href="https://med-mastodon.com/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a>, and related news, advocacy and research for the week of March 31 - April 6.</p><p>Topics:<br>News, advocacy and articles<br>Coming events<br>Research news and commentary<br>& Published research</p><p><a href="https://www.s4me.info/threads/news-in-brief-april-2025.43486/#post-599334" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">s4me.info/threads/news-in-brie</span><span class="invisible">f-april-2025.43486/#post-599334</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
DoNoHarm BC<p>Advocacy opportunity 📣 Pre-register to present directly to BC gov about YOUR priorities for the next provincial budget! Registration deadline April 11 at 2pm: <a href="https://www.leg.bc.ca/parliamentary-business/committees/annual-fgs-budget-consultation" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">leg.bc.ca/parliamentary-busine</span><span class="invisible">ss/committees/annual-fgs-budget-consultation</span></a> (Presenting can be done virtually; they’ll follow up in May about whether you’ve been selected. Additional written input options will open in June.)</p><p>Our last budget campaign resulted in several key commitments, including over $3 billion for COVID supports: <a href="https://donoharmbc.ca/bc-budget-2024-analysis/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">donoharmbc.ca/bc-budget-2024-a</span><span class="invisible">nalysis/</span></a> But there’s still far more to be done - so if you want things like <a href="https://zeroes.ca/tags/CleanAir" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CleanAir</span></a>, <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> care, or ongoing vaccine access including <a href="https://zeroes.ca/tags/Novavax" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Novavax</span></a>, this is a great chance to speak directly to policy-makers!</p>
Martin Axiomer<p>Studie zur Omikron-Variante: Bei der zweiten Infektion ist das LongCovid-Risiko mehr als doppelt so hoch, bei der dritten Infektion über sechsmal so hoch.</p><p><a href="https://www.thelancet.com/journals/lanwpc/article/PIIS2666-6065(25)00044-6/fulltext" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thelancet.com/journals/lanwpc/</span><span class="invisible">article/PIIS2666-6065(25)00044-6/fulltext</span></a></p><p><a href="https://23.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://23.social/tags/Corona" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Corona</span></a> <a href="https://23.social/tags/Gesundheit" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Gesundheit</span></a> <a href="https://23.social/tags/Wissenschaft" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Wissenschaft</span></a></p>
Marcos<p>And so begins the quarantine migration. Whenever my partner is out and about for work or for the very infrequent social time, she will quarantine when she gets back for 5 days in a particular area of the house. That area also has my bed and office, so I get to relocate temporarily until we confirm she's "safe" with a NAAT.</p><p>It is what we do to keep everybody safe and though it is not the most convenient sometimes, it is far more convenient than <a href="https://clacks.link/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> </p><p>She masks always, and also works out ways to not eat with the crowd, so her risk is considerably less than people who don't make the effort. And it is an effort to do. One I wish more people would do.</p><p>Can't even get all the healthcare providers to wear masks when the hospital has a mask mandate much less expect better from the general public. </p><p>Nevertheless, this is <a href="https://clacks.link/tags/LivingWithCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LivingWithCovid</span></a> <br>It isn't really that difficult. At least as long as you have empathy and love for the people around you.</p>
Bass #AlleBurgers #EcoHumanist<p>Besmettingsrisico Covid19 is door het dal heen, maar nog steeds / weer LAAG. Rioolwaarde op 29-3 was 97. Geschat aantal besmettingen PER DAG ~3500 → ~350 extra LongCovid-patiënten per dag, waarvan ~85 ernstig beperkt. De griepgolf, hoogste in 5 jaar, eist nog steeds slachtoffers: aantal griepdoden sinds 1 januari minstens 3659 (RIVM oversterfte sinds 1-1). </p><p><a href="https://locovid.nl/oversterfte-ziekte-en-verspreiding-covid19-2025-13/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">locovid.nl/oversterfte-ziekte-</span><span class="invisible">en-verspreiding-covid19-2025-13/</span></a><br><a href="https://mastodon.nl/tags/LoCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LoCovid</span></a> <a href="https://mastodon.nl/tags/SarsCoV2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SarsCoV2</span></a> <a href="https://mastodon.nl/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
Tom Kindlon<p>3/</p><p>"Despite updated NICE guidelines, only 10.1% of participants reported a positive impact on care, and satisfaction with NHS services remained low (6.9% for ME/CFS and 14.4% for long COVID)."</p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span></p>
Allysse Riordan<p>Day 06 of <a href="https://mastodon.art/tags/30DaysOfBiking" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>30DaysOfBiking</span></a></p><p>I wasn't supposed to cycle today but I did. With my partner, we went in search of blossoms through alleyways and tucked away cycle paths. We found a lot. Wild cherry, Japanese cherry, apples and pears, blackthorn (are those blossoms too?), and other trees not in flowers. There was a lot of stopping, a lot of gawking, and a lot of photography.</p><p>I'm back home now, happy and definitely fatigued but it was worth it for the memories and the smiles on our faces.</p><p><a href="https://mastodon.art/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
Tom Kindlon<p>Please support Dr David Tuller's important work: he has the necessary skills, knowledge & networks to be able to challenge those who promote dubious psychobabble theories & that conditions can be overcome with enough effort/discipline </p><p><a href="https://crowdfund.berkeley.edu/project/46120" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">crowdfund.berkeley.edu/project</span><span class="invisible">/46120</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longhaulers</span></a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDBrain</span></a> <a href="https://disabled.social/tags/NeuroPASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NeuroPASC</span></a></p><p><span class="h-card" translate="no"><a href="https://trialbyerror.org/author/david/" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>david</span></a></span></p>
Lyndsay Barwell<p>I decreased intensity on the bike and still have mild pem this morning. My suspicion is that because the strength training equipment doesn't track heart rate, it's the strength training causing it. </p><p>So I'll take a break from that unless it's gentler (e.g. yoga). Then I can hopefully find what's in my capacity for cardio. And sort a heart rate monitor.</p><p><a href="https://sciences.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://sciences.social/tags/longcovidexercise" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovidexercise</span></a></p>
Tom Kindlon<p>MEAction Network:</p><p>Join our Partner Caregivers (all caregivers of <a href="https://disabled.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pwME</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/IACCs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>IACCs</span></a> etc. welcome) meeting April 6 at 3 pm ET where we're discussing "How to Get Involved with ME/CFS and Long COVID Advocacy" with @meactnet Laurie Jones and @PlzsolveCFS Emily Taylor.<br><a href="https://www.meaction.net/event/me-partner-caregivers-support-group-2025-04-06/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meaction.net/event/me-partner-</span><span class="invisible">caregivers-support-group-2025-04-06/</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span></p>
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