Raeyn<p>This week is a week of floating my teeth, ha ha. So like, Meniere's Disease is poorly understood, but one of the big theories is fluid build-up in the inner ear. So stuff like diuretics and low salt diets are often prescribed. </p><p>But for me... I don't retain water. Like, I didn't even in pregnancy. So when I started having more wobbles after dinner, I'm like... more water after dinner? Doctor is like sure, sounds good. </p><p>And this week it finally docked in my dim head that heyee, maybe actually drinking sufficient water during the day will help too, you dumb sweet potato self. Unsurprisingly, it helps :p So just gotta sit on myself to remember to drink a reasonable number of pints during the day, instead of like, half of one and a few sodas. It's not like I mind drinking water, I just sort of forget. xD</p><p>Past that, last day of work for a week, woo, etc. Spouse booked us off for half-term; we're not going anywhere or doing anything, which is perfect. We definitely have a preference for staying home and chilling. The only thing planned is to get Chinese tonight. We always get enough for two nights because of delivery costs, so nom nom, beef chow mein for me.</p><p><a href="https://toot.cat/tags/dailylog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dailylog</span></a> <a href="https://toot.cat/tags/deardiary" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>deardiary</span></a> <a href="https://toot.cat/tags/menieresdisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>menieresdisease</span></a> <a href="https://toot.cat/tags/raventhecat" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>raventhecat</span></a> <a href="https://toot.cat/tags/catsofmastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>catsofmastodon</span></a></p>
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#menieresdisease
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Felix 🇺🇦🚴♂️🇨🇦🇬🇱🇩🇰🇲🇽🇵🇦 🇪🇺<p>Wie eine experimentelle OP Alan Shepard doch noch zum Mond brachte<br><a href="https://norden.social/tags/menieresdisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>menieresdisease</span></a> <a href="https://norden.social/tags/morbusMeniere" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>morbusMeniere</span></a> <a href="https://norden.social/tags/weltraum" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>weltraum</span></a> <a href="https://norden.social/tags/nasa" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>nasa</span></a> <a href="https://norden.social/tags/medizin" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>medizin</span></a> <a href="https://norden.social/tags/geschichte" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>geschichte</span></a> <br><a href="https://www.watson.ch/wissen/anekdoteles/800144717-wie-eine-experimentelle-op-alan-shepard-doch-noch-zum-mond-brachte" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">watson.ch/wissen/anekdoteles/8</span><span class="invisible">00144717-wie-eine-experimentelle-op-alan-shepard-doch-noch-zum-mond-brachte</span></a></p>
Raeyn<p>Just got back from my 1st Annual ENT Appointment. My hearing hasn't gotten any worse in the past year, which is win. The doctor and I are satisfied that medication is well managing my Meniere's Disease, though we reserve the right to tinker up my main med if needed. We're in agreement about titrating off of Prochlorperazine, because I'm not convinced it's actually helping. It's not hurting though, so. We'll see.</p><p>Today is also awesome, 'cause we are *finally* getting a shower in. Our handyman is only... oh... 13 months late on doing it, but we forgive him. He's had health issues, and he's also been training up his daughter as his apprentice, so busy.</p><p>Right, gotta get back to work. I'd like to get stuff done before my normal knocking off time, so I've got bonus caffeine and am trying to find a bit of focus. So it goes.</p><p><a href="https://toot.cat/tags/deardiary" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>deardiary</span></a> <a href="https://toot.cat/tags/dailylog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dailylog</span></a> <a href="https://toot.cat/tags/menieresdisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>menieresdisease</span></a></p>
Wm.son<p><a href="https://universeodon.com/tags/MenieresDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MenieresDisease</span></a> <a href="https://universeodon.com/tags/HearingLoss" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HearingLoss</span></a> <a href="https://universeodon.com/tags/ASL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ASL</span></a> <a href="https://universeodon.com/tags/Deafness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Deafness</span></a> <a href="https://universeodon.com/tags/TeachingASL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TeachingASL</span></a></p><p>I'm planning ahead, hopefully I will not lose my hearing altogether, but if i should, I want to be prepared. So...American Sign Language...</p><p>If you have any experience with it, esp learning it as a hearing person, is online learning or in person learning the better method?</p>
Wm.son<p><a href="https://universeodon.com/tags/MenieresDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MenieresDisease</span></a> <a href="https://universeodon.com/tags/Vertigo" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Vertigo</span></a> <a href="https://universeodon.com/tags/WellThisSucks" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>WellThisSucks</span></a> </p><p>After nearly 4 hours of vertigo, I can finally walk and type. I was bringing our dog to the vet when it struck. I was barely able to pull over!</p><p>I have had episodes for a few years now and finally got a diagnosis of Meniere's disease.</p><p>I am on two meds for this issue, and I dislike the Nortriptyline a lot. The Betahistine didn't seem to have an effect, and it's not a covered medicine---172 bucks a month.</p><p>Typically, my symptoms vary from mild to moderate and last under one minute--strong would be a drop attack where there's no time to grab anything and its body meets floor. </p><p>I have been seeing a specialist (so very thankful for insurance!) and have had a series of tests, with a couple invasive options left for me, each come with permanent hearing loss in the affected ear. But if that's what it takes, so be it.</p><p>Today sucked.</p>
Steve Langton<p>Looking forward to tomorrow's Folk Horror film festival at Derby Quad cinema, though I feel like crap today. Meniere's Disease rears its head again. Still, I'm determined to go, so bollocks to it!<br><a href="https://mstdn.social/tags/film" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>film</span></a> <a href="https://mstdn.social/tags/cinema" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cinema</span></a> <a href="https://mstdn.social/tags/horror" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>horror</span></a> <a href="https://mstdn.social/tags/menieresdisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>menieresdisease</span></a></p>
Felix 🇺🇦🚴♂️🇨🇦🇬🇱🇩🇰🇲🇽🇵🇦 🇪🇺<p>Zum <a href="https://norden.social/tags/TagderSeltenenErkrankungen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TagderSeltenenErkrankungen</span></a> möchte ich gerne die Erkrankung Morbus Menière vorstellen. <br>Mehr Infos zur Erkrankung findet ihr auf <a href="https://kimm-ev.de/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">kimm-ev.de/</span><span class="invisible"></span></a> </p><p>Symptome:<br>- Drehschwindelanfälle ( zwischen 10 Minuten und mehreren Stunden), verbunden mit unstillbarem Erbrechen<br>- Tinnitus ( Ohrengeräusch )<br>- Hörminderung ( alle Stufen bis zur Ertaubung ) Druckgefühl in oder hinter dem Ohr</p><p>Wer Fragen hat kann mich gerne kontaktieren. </p><p><a href="https://norden.social/tags/menieres" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>menieres</span></a> <a href="https://norden.social/tags/menieresdisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>menieresdisease</span></a><br><a href="https://norden.social/tags/morbusMeniere" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>morbusMeniere</span></a> <a href="https://norden.social/tags/rarediseaseday" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rarediseaseday</span></a></p>
Steve B<p>Horrible bad day thanks to Ménière's disease. It’s the first really bad attack in almost a year, so grateful for that. But my god today it seriously reminded me of its existence. </p><p>Eventually passed around 5pm, after kicking in around 11am. Been laying down all day but now I’m just exhausted, which is normal after such an episode. </p><p>Hopefully it’s just a one off and not the sign of another bad period ahead. </p><p>On a plus, I did binge Bodies on Netflix. Which was rather good. </p><p><a href="https://mastodon.ie/tags/menieresdisease" class="mention hashtag" rel="tag">#<span>menieresdisease</span></a></p>
Steve B<p>Today is going to be a really interesting day!</p><p>I have <a href="https://mastodon.ie/tags/menieresdisease" class="mention hashtag" rel="tag">#<span>menieresdisease</span></a> , which is a <a href="https://mastodon.ie/tags/vestibular" class="mention hashtag" rel="tag">#<span>vestibular</span></a> disorder. </p><p>I've been sent some drone footage of a clients business that needs to be edited and added to his website. </p><p>The video is great, but it's super spinny, as the drone flies around the grounds and in and out of all the rooms in the buildings. </p><p>So far, I've watched it once, and already need to go lay down!</p>
S Fraser<p><span class="h-card"><a href="https://mindly.social/@Ziagrrrl" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>Ziagrrrl</span></a></span> Thanks for writing this. I suffer from <a href="https://mastodon.scot/tags/MenieresDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MenieresDisease</span></a>, a type of vertigo. I frequently have to deal with those physical symptoms (although thankfully not the 'Alice in Wonderland' effects. I don't think people realise just how debilitating it can be, your article covered that extremely well.</p>
Steve B<p>For the first time in months my Ménière's disease is back with a vengeance this afternoon. It’s been creeping up on me for about a week now, but since I’ve learnt to manage it now, it hasn’t really gotten bad for over a year. Today though it just wanted to show itself big time and remind me that it’s in charge. </p><p>So it’s early to bed and hope it settles tomorrow, as I’ve some busy days in the garden ahead getting it ready for my youngests graduation party on Thursday. </p><p><a href="https://mastodon.ie/tags/menieresdisease" class="mention hashtag" rel="tag">#<span>menieresdisease</span></a></p>
It is I, Paul.<p>Current <a href="https://mastodon.social/tags/tinnitus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>tinnitus</span></a> vibe: Pressing an ear to the interior wall of an airplane in flight, with a hint of screaming. Everything may be on fire.</p><p><a href="https://mastodon.social/tags/VestibularDisorder" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>VestibularDisorder</span></a> <a href="https://mastodon.social/tags/MenieresDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MenieresDisease</span></a> <a href="https://mastodon.social/tags/VestibularMigraine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>VestibularMigraine</span></a></p>
Amber Hieb<p>The persistent tinnitus in both my ears is significantly louder this morning, which results in reduced ability to hear overall. Not knowing how long it will last or if it will get worse is the most challenging part to manage. Last fall, I was effectively deaf for 4 months and managed through it, but it was exhausting. I don't feel ready for another round. I feel sad and frustrated. </p><p><a href="https://mastodon.social/tags/menieres" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>menieres</span></a> <a href="https://mastodon.social/tags/menieresdisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>menieresdisease</span></a> <a href="https://mastodon.social/tags/tinnitus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>tinnitus</span></a></p>
It is I, Paul.<p>The <a href="https://mastodon.social/tags/vertigo" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>vertigo</span></a> is easing, but my <a href="https://mastodon.social/tags/tinnitus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>tinnitus</span></a> is obnoxiously loud this morning. Sounds like a hairdryer… <a href="https://mastodon.social/tags/MenieresDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MenieresDisease</span></a></p>
Somosdisca :vf:<p>Cada 7 de febrero se celebra el día mundial del síndrome de Ménière, para dar a conocer esta enfermedad tan incapacitante del oido.</p><p><a href="https://somosdisca.es/dia-mundial-del-sindrome-de-meniere/" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="ellipsis">somosdisca.es/dia-mundial-del-</span><span class="invisible">sindrome-de-meniere/</span></a></p><p><a href="https://masto.es/tags/enfermedadesraras" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>enfermedadesraras</span></a> <a href="https://masto.es/tags/meniere" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>meniere</span></a> <a href="https://masto.es/tags/menieresdisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>menieresdisease</span></a> <a href="https://masto.es/tags/m%C3%A9ni%C3%A8re" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ménière</span></a> <a href="https://masto.es/tags/m%C3%A9ni%C3%A8res" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ménières</span></a> <a href="https://masto.es/tags/m%C3%A9ni%C3%A8res" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ménières</span></a> <a href="https://masto.es/tags/discapacidad" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>discapacidad</span></a> <a href="https://masto.es/tags/discapacidadauditiva" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>discapacidadauditiva</span></a> <a href="https://masto.es/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://masto.es/tags/disabilities" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabilities</span></a> <a href="https://masto.es/tags/disca" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disca</span></a> <a href="https://masto.es/tags/gentetitanica" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gentetitanica</span></a> <a href="https://masto.es/tags/Somosdisca" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Somosdisca</span></a> <a href="https://masto.es/tags/visibilidad" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>visibilidad</span></a> <a href="https://masto.es/tags/mareos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mareos</span></a> <a href="https://masto.es/tags/s%C3%ADndromedem%C3%A9ni%C3%A8re" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>síndromedeménière</span></a> <a href="https://masto.es/tags/sindromedemeniere" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sindromedemeniere</span></a> <a href="https://masto.es/tags/enfermedaddemeniere" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>enfermedaddemeniere</span></a> <a href="https://masto.es/tags/Salud" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Salud</span></a></p>
Mark Kilby (he/him)<p>I'm searching for more info and people with experience of meniere's disease. </p><p>Wondering if my fellow <a href="https://hachyderm.io/tags/hachyderm" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hachyderm</span></a> citizens (or anyone) has suggestions other than following <a href="https://hachyderm.io/tags/neurodivergent" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neurodivergent</span></a> (as it doesn't seem an exact intersection). </p><p>Also <a href="https://hachyderm.io/tags/menieres" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>menieres</span></a> and <a href="https://hachyderm.io/tags/menieresdisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>menieresdisease</span></a> doesn't seem to get a lot of traffic.</p><p>Ya know, asking for a friend.</p>
Steve B<p>My good old <a href="https://mastodon.ie/tags/Menieresdisease" class="mention hashtag" rel="tag">#<span>Menieresdisease</span></a> is being particularly nasty to me today. It's not gone full throttle. It's just messing my head up just enough to make everything take twice as long. And I'm now exhausted.</p><p>Bastard.</p>
It is I, Paul.<p>I live with a chronic condition called <a href="https://mastodon.social/tags/MenieresDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MenieresDisease</span></a>. <br>It’s an I’ll-understood condition, but the layperson’s explanation is that the balance organ in my left ear is dying. In the last ~7 years, I’ve gone <a href="https://mastodon.social/tags/deaf" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>deaf</span></a> on that side, manage some level of <a href="https://mastodon.social/tags/vertigo" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>vertigo</span></a> daily, and live with a commensurate amount of <a href="https://mastodon.social/tags/ChronicFatigue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigue</span></a> and brain fog. It’s also invisible. <br>I don’t look ill or disabled, but I’m both.<br>Today has been rough.</p>
HannahCrazyhawk<p><a href="https://universeodon.com/tags/Intro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Intro</span></a> (Part 2). I'm <a href="https://universeodon.com/tags/autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autistic</span></a> and hard of hearing. I battle <a href="https://universeodon.com/tags/trigeminalneuralgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>trigeminalneuralgia</span></a>, <a href="https://universeodon.com/tags/HidradenitisSuppurativa" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HidradenitisSuppurativa</span></a>, <a href="https://universeodon.com/tags/M%C3%A9ni%C3%A8resDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MénièresDisease</span></a>, <a href="https://universeodon.com/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a>, <a href="https://universeodon.com/tags/CPTSD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CPTSD</span></a>, <a href="https://universeodon.com/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a>, and <a href="https://universeodon.com/tags/erythromelalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>erythromelalgia</span></a>. I'm a multiple <a href="https://universeodon.com/tags/TBI" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TBI</span></a> and <a href="https://universeodon.com/tags/sepsis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sepsis</span></a> Survivor. Despite my agony, my urge to photograph, study, and narrate the world around me continues to be my driving force. </p><p>I love <a href="https://universeodon.com/tags/StarTrek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StarTrek</span></a>, <a href="https://universeodon.com/tags/Physics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Physics</span></a>, <a href="https://universeodon.com/tags/Botany" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Botany</span></a>, <a href="https://universeodon.com/tags/Cosmology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Cosmology</span></a>, <a href="https://universeodon.com/tags/astrophysics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>astrophysics</span></a>, <a href="https://universeodon.com/tags/Reading" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Reading</span></a>, and hot baths.</p><p>Here's where I sell my fine art:<br>www.hannahcrazyhawk.com</p>
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