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#multiplesclerosis

4 posts4 participants0 posts today

Hey folks.
I rarely post #MutualAid asks, but today is an exception.
My friend of many years, Aaron Askanase, has progressive #MultipleSclerosis and needs a #ServiceDog to help him continue to live a dignified life.
Aaron and his family are truly good people, and this will make a huge difference in their lives.
Please donate, if you can. Every little bit helps. Thank you!
NOTE: Donations go through the org, not Aaron specifically, and are tax-deductible.
giving.classy.org/campaign/706

Assistance Canine Training Services share image
giving.classy.orgDonate to Aaron Askanase Service Dog FundraiserHelp Aaron flip the script on MS with the support of a service dog!
Continued thread

That sounds a bit conceited. It really isn’t meant to. I’ve never been a particularly talented runner. I only started running marathons about 6 years after my #MultipleSclerosis diagnosis and was mainly powered by sheer bloody-mindedness. I want everyone, whatever speed they run, to feel the simple joy and achievement of participation. Too much coaching doesn’t celebrate the runners at the back.

Near the end of this month, on September 27th and 28th, the National Multiple Sclerosis Society (NMSS) is running their Bike MS: City to Shore event across New Jersey again, as they have done every year starting in 1980 other than 2015 (Hurrican Joaquin) and 2020 (COVID-19). This is a fundraiser event, which I am participating in, and I would like people who have the ability to donate to the NMSS.

Multiple Sclerosis, or MS, is a neurodegenerative disease. It cause the myelin sheaths that insulate neurons from each other to break down, limiting their ability to transmit signals. Because it is active in the central nervous system, it can cause almost any neurological symptom, including loss of coordination, muscle spasms, vision loss, slowed information processing, and depression, among many others. Nearly one million people have MS in the US alone.

The NMSS collects funds from donors and puts them toward research into new medicines to treat MS and toward direct aid to people with MS, helping them afford medicines and mobility aids they otherwise couldn't get. And progress has been made—we have much better treatments now than a few short decades ago, and at least before TFG's assault on health and medicine, we were moving towards a complete cure and/or vaccine.

Which brings us to the salient point: unlike in previous years, the US government is no longer funding medicine. That means that nonprofits like the NMSS need to provide the shortfall. That means that small donors like (hopefully) you are needed to protect the health of one million people.

Below is the link to donate to the event as a whole. I would put mine, but it has my real name, which I don't want to associate with this account publicly. If we've interacted before, you can DM me and I might give you my link, but it all goes to the same place anyway. Donate if you can, but BOOST REGARDLESS.

events.nationalmssociety.org/e

National Multiple Sclerosis Society (NMSS)I'm participating in Bike MS: City to Shore Ride 2025!I’m participating in Bike MS: City to Shore Ride 2025 to raise funds for the National Multiple Sclerosis Society. Nearly one million people in the US are living with the challenges and uncertainty of multiple sclerosis (MS). The funds you raise through Bike MS fuel the life-changing programs and services the Society provides, so we can be there for people affected by MS when they need us most. Your support will help continue the Society’s research in finding a cure for MS — donate today!

New La Trobe Uni [Australia] press release:

"Long COVID could hold key to ME/CFS, MS"

latrobe.edu.au/news/articles/2

The Post-Acute Viral Infection diseases Group (PAVING) Centre of Research Excellence will be launched with $3 million in Federal funding from NHMRC.

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MultipleSclerosis #Lyme

Horrible MS relapse the past 3 days where my hands are just not working at all, and I am wobbling so much when I walk, I look drunk. I don't want to touch anything (even pushing keys hurts). I take a look at the weather network where I'm pretty sure it said all week would be 22C ... Oh. It's 33C.. welp. I guess that explains that.

2x 21in25 - 43👨‍🦯🏃‍♂️🏃‍♂️‍➡️👨‍🦯‍➡️&
2x 21in25 - 44👨‍🦯🏃‍♂️🏃‍♂️‍➡️👨‍🦯‍➡️

Nachdem die letzten Wochen von einer unbändigen tiefen Erschöpfung geprägt waren, geht es so langsam wieder aufwärts.

Bedeutet für mich wieder viel Geduld, langsam machen.

So ist „Laufen mit angezogener Handbremse“ angesagt , dann klappt es auch mit dem halben badenmarathon

gregory-ms.com/articles/134361

1,407 patients with multiple sclerosis from 57 centres in 15 autonomous communities were included in the study. The most frequent form of disease presentation was the relapsing remitting form (89.3%). The most prescribed disease-modifying treatment was dimethyl fumarate (19.1%), followed by teriflunomide (14.0%). Of the parenteral treatments, the two most prescribed were glatiramer acetate and ...