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13 slides from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams:
https://www.emerge.org.au/wp-content/uploads/2023/05/2023-Final-Awarness-week-2023-Dont-push-harder-stop-rest-pace1.pptx

Recording of talk is available here:
https://www.emerge.org.au/me-cfs-awareness-week-2023/

#MyalgicEncephalomyelitis #PwME #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE @mecfs @cfs #longhaulers #LongCovid #Covidlonghaulers #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC @longcovid

Don'tPush Hard Don't Push Harder. Stop. Rest. Pace. Laura Allen, RN Camille Williams, RN Health and Support Manager Telehealth Nurse Specialist Special thank you to those who have shared their artwork for this presentation Karen, Gretchen, Inga and Laina ME/CFS Awareness Week 8th-14th May 2023

Jun 10, 2023, 11:11 AM··Web

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**Irish ME/CFS Association** @IrishMECFSAssociation · Jun 10, 2023

Jun 10, 2023

Irish ME/CFS Association @IrishMECFSAssociation

A slide from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams: https://www.emerge.org.au/wp-content/uploads/2023/05/2023-Final-Awarness-week-2023-Dont-push-harder-stop-rest-pace1.pptx

Recording of talk is available here: https://www.emerge.org.au/me-cfs-awareness-week-2023/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME

@mecfs @cfs @longcovid

.Don't Push harder. Stop. Rest Pace.

Stop.
Activity before you experience symptoms, or as soon as you notice an increase in symptoms.

Rest.
Take regular rest breaks throughout the day

Pace.
This involves breaking activities up with periods of rest, to allow our battery to charge. Everyone will be different in how much we can do and how much rest we need.

**Irish ME/CFS Association** @IrishMECFSAssociation · Jun 10, 2023

Jun 10, 2023

Irish ME/CFS Association @IrishMECFSAssociation

3/
A slide from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams: https://www.emerge.org.au/wp-content/uploads/2023/05/2023-Final-Awarness-week-2023-Dont-push-harder-stop-rest-pace1.pptx

Recording of talk is available here: https://www.emerge.org.au/me-cfs-awareness-week-2023/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME

@mecfs @cfs @longcovid

Don't Push harder. It might be PEM!

+ PEM can be triggered by physical and/or cognitive activity, as well as emotional, & physical traumas, orthostatic and sensory stressors

+PEM is the exacerbation of symptoms when patients exceed their energy threshold

+The increase in symptoms, and reduction in ability, may be immediate or delayed by up to 72 hours.

+ The duration of PEM is unpredictable and can last from hours to days to weeks

+ PEM and fatigue are different .

Activity past a certain threshold will decrease function and increase symptoms severity

**Irish ME/CFS Association** @IrishMECFSAssociation · Jun 10, 2023

Jun 10, 2023

Irish ME/CFS Association @IrishMECFSAssociation

4/
A slide from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams: https://www.emerge.org.au/wp-content/uploads/2023/05/2023-Final-Awarness-week-2023-Dont-push-harder-stop-rest-pace1.pptx

Recording of talk is available here: https://www.emerge.org.au/me-cfs-awareness-week-2023/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME

@mecfs @cfs @longcovid

Don't push harder. If you have PEM symptoms

+ Reduced stamina

+ Physical fatigue

+ mentally wired

+ Cognitive exhaustion

+ Problems thinking

+ Unrefreshed sleep

+ Insomnia

+ Muscle pain

+ Muscle weakness

+ Dizziness

+ Flu like symptoms

**Irish ME/CFS Association** @IrishMECFSAssociation · Jun 11, 2023

Jun 11, 2023

Irish ME/CFS Association @IrishMECFSAssociation

5/
A slide from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams: https://www.emerge.org.au/wp-content/uploads/2023/05/2023-Final-Awarness-week-2023-Dont-push-harder-stop-rest-pace1.pptx

Recording of talk is available here: https://www.emerge.org.au/me-cfs-awareness-week-2023/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME

@mecfs @cfs @longcovid

PEM, the community voice 2022

Like a brick wall falling on me and not being able to move or think or talk

< A full drain of energy,

< Not able to think straight at all pain, weakness

< My body is on fire

< Going into hibernation

< Flat like a ribbon

< Completely debilitated

< Completely debilitated

< Like walking through sand

< Killed my power switch

< Legs burning with lactic acid

< Feel like I've been hit by a truck

< Exhausticated

Laina Alexander, year 12 artworks @chronichorbi.

Crash, crashed, wrecked, flare up, payback, no more spoons,
comatose state, no more spoons, flat like a ribbon

**Irish ME/CFS Association** @IrishMECFSAssociation · Jun 12, 2023

Jun 12, 2023

Irish ME/CFS Association @IrishMECFSAssociation

6/
A slide from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams: https://www.emerge.org.au/wp-content/uploads/2023/05/2023-Final-Awarness-week-2023-Dont-push-harder-stop-rest-pace1.pptx

Recording of talk is available here: https://www.emerge.org.au/me-cfs-awareness-week-2023/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME

@mecfs @cfs @longcovid

Don't push harder. STOP. emerge The community voice awareness week 2022

- When in doubt, lie down!!

- Learn to stop... why sit when you can stand... why stand when you can lie down...

- STOP, REST....

-Don’t push through

- Don’t lose hope

- Give yourself a break and learn to listen to your body. What’s your body trying to tell you?

- Stop pushing

- Believe in yourself and your understanding of your own body

- Learn what your PEM symptoms are so you know your warning signs to stop

A place I'd like to rest by Karen Le Roux

- Learning to stop, can be more difficult than it seems. Stop activities before you experience symptoms, or as e soon as you notice an increase in symptoms.

**Irish ME/CFS Association** @IrishMECFSAssociation · Jun 12, 2023

Jun 12, 2023

Irish ME/CFS Association @IrishMECFSAssociation

7/
A slide from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams: https://www.emerge.org.au/wp-content/uploads/2023/05/2023-Final-Awarness-week-2023-Dont-push-harder-stop-rest-pace1.pptx

Recording of talk is available here: https://www.emerge.org.au/me-cfs-awareness-week-2023/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME
@mecfs @cfs @longcovid

Don't push harder. REST. emerge .

STOP REST PACE REPEAT

Sleep involves hormonal changes and when a person is sleeping, they are unaware of their surroundings.

Rest is when the mind is consciously relaxed, but the person is aware of what is happening around them.

Complete rest involves minimal activity. This means no stimulation, like TV, social media, reading or listening to music

For some, this is very restrictive and may need to be adjusted to meet the needs of the individual.

The aim is to reduce activity to a minimum, allowing the body to recharge

**Irish ME/CFS Association** @IrishMECFSAssociation · Jun 13, 2023

Jun 13, 2023

Irish ME/CFS Association @IrishMECFSAssociation

8/
A slide from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams: https://www.emerge.org.au/wp-content/uploads/2023/05/2023-Final-Awarness-week-2023-Dont-push-harder-stop-rest-pace1.pptx

Recording of talk is available here: https://www.emerge.org.au/me-cfs-awareness-week-2023/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME
@mecfs @cfs @longcovid

Don't push harder. emerge Relax the mind and body to recharge

If complete rest is causing discomfort or distress, finding other ways, to reduce activity is important.

- find a quiet activity to do, such as drawing, building Lego or listening to a story

- do an audio meditation or listen to soft music

- sit in nature

-lie with legs elevated and a mask covering eyes or a soft fan blowing on the face

This isn't easy
Be kind to yourself

If rest was an Olympic sport, go for gold
Community voice awareness week 2022

**Irish ME/CFS Association** @IrishMECFSAssociation · Jun 14, 2023

Jun 14, 2023

Irish ME/CFS Association @IrishMECFSAssociation

9/
A slide from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams: https://www.emerge.org.au/wp-content/uploads/2023/05/2023-Final-Awarness-week-2023-Dont-push-harder-stop-rest-pace1.pptx

Recording of talk is available here: https://www.emerge.org.au/me-cfs-awareness-week-2023/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME

@mecfs @cfs @longcovid

Don'’t push harder. Explore options to rest

Some people find certain types of external stimulation can help them relax and quiet their mind. Try and explore using a weighted blanket, lying in a hammock, or using white/pink noise.

“Megan has moderate ME/CFS, and she also has ADHD. She finds resting difficult and feels agitated when she tries to lie down with no external sounds or activity. She has explored different options and has found swinging gently in a hammock or using a weighted blanket help her rest. Sometimes listening to an audio meditation or enjoyable podcast with positive content is also helpful. Sketching quietly also puts her into a restful state”.

**Irish ME/CFS Association** @IrishMECFSAssociation · Jun 15, 2023

Jun 15, 2023

Irish ME/CFS Association @IrishMECFSAssociation

10/

Recording of talk is available here: https://www.emerge.org.au/me-cfs-awareness-week-2023/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME

@mecfs @cfs @longcovid

Don’t push harder. Pace.

The aim of pacing is to leave some ‘energy in your battery’ at the end of the activity.

Pacing, like any other skill, must be practiced. It becomes easier over time.

An increase in symptoms after adding additional activity may indicate that you have exceeded your energy limits and you should reduce to the previous activity level.

If possible, you should not attempt more activity until PEM has reduced.

**Irish ME/CFS Association** @IrishMECFSAssociation · Jun 15, 2023

Jun 15, 2023

Irish ME/CFS Association @IrishMECFSAssociation

11/

Recording of talk is available here: https://www.emerge.org.au/me-cfs-awareness-week-2023/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME
@mecfs @cfs @longcovid

Don’t push harder. Pace.

Identify areas where energy expenditure could be reduced, Consider:

- how important is the activity?

- can the activity be completed less often?

- can the energy used to complete the activity be reduced?

- can someone else support/help with the activity?

**Irish ME/CFS Association** @IrishMECFSAssociation · Jun 16, 2023

Jun 16, 2023

Irish ME/CFS Association @IrishMECFSAssociation

12/
A slide from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams: https://www.emerge.org.au/wp-content/uploads/2023/05/2023-Final-Awarness-week-2023-Dont-push-harder-stop-rest-pace1.pptx

Recording of talk is available here: https://www.emerge.org.au/me-cfs-awareness-week-2023/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME

@mecfs @cfs @longcovid

**Irish ME/CFS Association** @IrishMECFSAssociation · Jun 16, 2023

Jun 16, 2023

Irish ME/CFS Association @IrishMECFSAssociation

13/
Last slide from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams: https://www.emerge.org.au/wp-content/uploads/2023/05/2023-Final-Awarness-week-2023-Dont-push-harder-stop-rest-pace1.pptx

Recording of talk is available here: https://www.emerge.org.au/me-cfs-awareness-week-2023/

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