mastodon.ie is one of the many independent Mastodon servers you can use to participate in the fediverse.
Irish Mastodon - run from Ireland, we welcome all who respect the community rules and members.

Administered by:

Server stats:

1.5K
active users

#disabilitysupport

1 post1 participant1 post today

Reposting for #Reach: Mutual Aid Request – Florida 🌊☀️

Hi friends and community,
I live in West Florida along the Gulf Coast and I’m a disabled emotional caregiver who’s feeling pretty burnt out. I’m looking for a kind companion to join me for a short respite care trip to a beach — somewhere to rest, recharge, and enjoy the ocean.

I’m willing to travel anywhere in Florida for this, as long as the request is reasonable. If you’re interested, know someone who might be, or have ideas for making this possible, please reach out.

DMs are welcome, or feel free to comment here. Mentions are fine too. 💙

Today was the real start of my semester at UOW. I had a meeting with disability support to get everything in place, since I officially began yesterday. My first tutorial is at 3:30 this afternoon, followed by a lecture straight after. It feels good to be settling in and starting to find my rhythm.

I also contacted HumanWare about my Brailliant Braille display, which has been giving me some issues. Thankfully, it’s still under warranty, so I’ll be sending it off for repairs tomorrow. Fingers crossed it comes back in good shape!

Tonight’s dinner is chicken schnitzel with mashed potatoes and veggies, prepared by my husband, who is an absolutely brilliant cook. I feel very lucky.

After weeks of struggling with my previous institution, I finally made the difficult decision to withdraw. Despite submitting all documentation for disability adjustments early and following up multiple times, there were constant delays. Two weeks just to acknowledge a form (which included full reports and suggested supports) is far too long. These cases often simply need a conversation to confirm adjustments, not endless reviews.

There were also serious communication gaps: classes scheduled on public holidays with no clear guidance, lecturers not turning up, no way to reach them directly via email, and Canvas messages going unanswered. Even when I physically went to campus, staff tried to help but could not get through to anyone with authority to act. It was disheartening, especially because the course content was excellent. However, I’m thankful that I’ve now enrolled elsewhere and begin my studies on June 23. I’m already receiving much better support and feel hopeful moving forward.

I created a Discord server, Chronically United, that’s all-inclusive for the LGBTQIA+, disabled, chronically ill, misrepresented, underdiagnosed, BIPOC, elderly, youth, and everyone in between. 🌈🤝
Join us for support, community, and connection.

🔗 discord.gg/KKXJuTmvb8

DiscordJoin the Chronically United Discord Server!Check out the Chronically United community on Discord - hang out with 7 other members and enjoy free voice and text chat.

Some Compassion And Support Sure Would Be Nice,
I have so many unseen issues, most don’t realize the true difficulty I endure each day, first I don’t sleep well, for many reasons, from a brain that is constantly in overdrive, to relentless nightmares, to being in constant pain, to not having a decent supportive bed to sleep on, so my days start of painful, tired and overwhelmed before I even get going, Often I go hungry because living in #poverty I simply can not afford #food to eat, I typically only get around 600-800 calories a day when a man my size and age should be getting around 3000 calories a day, as a result despite my appearance I suffer from malnutrition, I have a great deal of difficulty cleaning my tiny cave, from not being able to afford the basics to have cleaning supplies to being physically limited in my ability to do so, I cant hardly bend over, nor can I very easily get up and down off the floor, taking a shower can simply become a serious challenge, and often leaves my exhausted not to mention I cant often afford the basics for personal hygiene, simply washing a dish or standing at the stove at times can be brutal on my back, then there are chores I need to tend to as part of my rent, and those absolutely can be a painful and exhaustive event for me, and those around often don’t even realize and expect more as a result, and if I say I have had enough today, I am questioned, because they assume I did what I did with ease, but they have no idea of the pain and struggle I had to endure to deal with to accomplish the tasks at hand, reading has become trouble some, as world become very blurry and melt together, writing is becoming increasingly difficult, as finding the words is getting harder and harder, being creative used to help but I have been in so much pain, and under so much stress that I often cant even muster up the energy to attempt to be creative, not to mention my camera is failing, my laptop is struggling, and again no money to obtain what I actually need, I have no #healthcare because the laws people pass have really messed that up, and after years fighting to get it resolved I have given up, so I fight through each day to just to suffer the next, I reach out constantly for financial support yet receive nearly nothing compared to what I actually need, this #disable man exists in #poverty, constant pain and my #anxiety exacerbates my #ptsd, my #bipolar cycles, and several other issues, my blood pressure has been all over the place and frankly in a rather obscenely high range for to long, my core body temp has been far lower than the average, while I often feel as though I am on fire, things get darker with my sight each day, and yet to bright, I hear and see so much that is not actually there, so very much wrong and no support nor help to be found, it would really truly help if people could and would help me #fundriase the money I need each day to live, and the money I need to set up a life where I can take care of myself and lessen the effects of poverty and disability on an aging body and mind.

$5-10-15 It All Helps, via #cashapp at $woctxphotog or via #paypal at paypal.com/donate?campaign_id=…

#bipolar,#woctxphotog,#anxiety,#cashapp,#DisabilityAwareness,#DisabilitySupport,#disabled,#food,#FromHungerToHope,#fundraise,#groceries,#health,#HopeRestored,#MentalHealthMatters,#MutualAid,#MutualAidHelp ,#Paypal,#poverty,#PovertyRelief,#pasjrwoctx

I’m feeling discouraged today. Studying for exams is terrifying for me, and I’m struggling with anxiety around it. To make things harder, I’ve had issues contacting one of my subject coordinators about extra time accommodations. Accessibility services told me to reach out to the coordinators, and while one replied, the other hasn’t. I contacted them Saturday and again yesterday but still haven’t heard back. I’ve contacted disability services for advice, but I’m worried my accommodations might not be upheld.

Replied in thread

@Natasha_Jay I need this but for health shit daily.

Like a section for medications, physio stretches, any measurements to take, and symptoms to discuss at next appt.

Each list would have Braille numbers or tactile symbols engraved. Then you glue a set of labels next to it so you can change them if you need to. And slap a laminated sticker over the lot.

Could do that as-is, really.

Where do I find these metal sheets with toggles?